One patient with glioblastoma still alive nine years later
by allyparr on Tue Jan 17, 2012 02:28 PM
Has anyone had MM with high calcium levels, if so what were your symtoms... took blood test, that will tell. He has loss of appetite, fatigue, stomach ache, nasseau, restless, thirsty...
by IdaDome on Thu Jan 19, 2012 05:14 AM
When I was diagnosed, I had high calcium levels. But I also had a lot of other problems including my kidneys shutting down. One of the big concerns with high calcium levels is that it can have effects on your heart. It can also effect your mental status.
I did feel really crappy during that time, many of the same symptoms you mention, but I'm not sure what caused what. They got my calcium levels down by flushing my system with lots of fluids. I did feel much better when they got these under control.
Good luck with getting the right treatment to help him through this time.
Janet in Idaho
by Windymoose50 on Thu Jan 19, 2012 02:15 PM
The high calcium levels are a symptom of MM... Most of us have them, is just a sign you have MM or have come out of remission. I have high calcium levels now, no symptoms that I know of....Gayle
by Billy1 on Thu Jan 19, 2012 06:00 PM
In MM, cancerous cells (osteoclasts) can eat away at the bone causing leaching out of calcium into the blood stream resulting in high serum calcium levels . This can be controlled to a degree by the use of bisphosphanets such as Zometa.
by KyBoy on Thu Jan 19, 2012 06:31 PM
My father had high calcicum levels before diagnosis... which the oncologists got down thereafter. You should be concerned about the high calcium, where are you being treated? I recommend UAMS Myeloma institite in Little Rock. they are the best.
by Windymoose50 on Fri Jan 20, 2012 10:53 PM
I start Zometa in March after my dental cleaning and exam.. Gayle
by dailyRx on Wed Nov 28, 2012 08:40 PM
Have you looked into Zometa? It's a means of treating blood calcium issues. Read more about it here: http://www.rxwiki.com/zometa
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