by suzanne55 on Wed Jan 18, 2012 06:54 AM
My husband has grade 4 GBM multiforme, with the primary tumor being located in the brainstem. He has recieved radiation, and is now on Temodar and Avastin.
All of the survivor stories I have read involve surgical removal of all or part of the tumor. Are there any survivors of inoperable GBM? Is it dumb to ask if surgery in the brainstem is EVER a possibility?
I'm looking for a little hope.
by Ducks-n-Row on Wed Jan 18, 2012 12:06 PM
Morning to you. I am glad you are there for him. Sounds like they have already started a protocal on your husband however..........It would not hurt to get a second opinion from a different Dr or Hospital. Just to see if opinions are the same.
Dx Nov 07
by saw10128 on Wed Jan 18, 2012 02:27 PM
Look down at the post called HOPE :)
by suzanne55 on Wed Jan 18, 2012 03:04 PM
by cathy68 on Wed Jan 18, 2012 07:48 PM
Is he a candidate for the vaccine trials? If my daughter qualified, I would try it.
by suzanne55 on Thu Jan 19, 2012 07:16 AM
What are the vaccine trials?
by Jimslovingwife on Thu Jan 19, 2012 08:25 AM
Hi Suzanne - my husband was diagnosed in 8/10 with an inoperable gbm, and is doing well on Avastin alone now. So, it can be done! Cathy
by gmgmaiaill on Thu Jan 19, 2012 09:53 AM
by faith456 on Thu Jan 19, 2012 02:42 PM
University of California has had good success with vaccine trials from what I have read. My doctor checked into it, but I'm not a candidate. It's experimental and they only accept grade 4 GBM patients. U of C is also a good place for a second opinion. I understand they have really good neuro-oncologists there. Not sure where you are, but I have one of the best doctors in the country in Dallas, TX. I fly down there every other month. I have a new group page on facebook too - Living with Brain Cancer. You're welcome to join if you like. I'm hoping it can be a good place for people to trade information and hope and encouragement. BTW, I'm a one year survivor of grade 3 anaplastic astrocytoma. I am also not a candidate for surgery at this point because it is in my left cerrebellum, I would no longer walk at the very least. I started out with 4 tumors, killed all of those and we are now killing the 5th that appeared over the summer. Don't lose hope. There is always hope. Hang in there.
by Edward_K on Sat Jan 21, 2012 01:29 PM
hi faith congradulations in tour battle. I an a stage 3 asto stg 3 surviver. I am going on 10 yrs on 5 jun 12. the doctors finally told me i have beated it' oh yea mine was in the same as yours and non op just rad and chemo and a solid positive additude. when first told the realy gave me 6 mths to a yr to live. i was set back for the 1st month or so but i started my positive battle against it you have 1 life to live and i felt that you might as well enjoy and do the thinks you want. i guess try to block it out. have you read the goerge plym story. he is my hero. just type his nam in and read this mans battle with brain cancer. he is living proof cancer can bebeatten.ifyou would like to keep in touch here is my
Message edited by CancerCompass staff. For personal protection,email address removed. Consider private reply. Please review CancerCompass Member Guidelines athttp://www.cancercompass.com/common/guidelines.html
byehope to keep in touch
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
Did you or your loved one seek a second opinion before starting cancer treatment?
No, but we got a second opinion after we started treatment
We care about your feedback. Let us know how we can improve your CancerCompass experience.