Survival without surgery

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Survival without surgery

by suzanne55 on Wed Jan 18, 2012 06:54 AM

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My husband has grade 4 GBM multiforme, with the primary tumor being located in the brainstem. He has recieved radiation, and is now on Temodar and Avastin.

All of the survivor stories I have read involve surgical removal of all or part of the tumor.  Are there any survivors of inoperable GBM? Is it dumb to ask if surgery in the brainstem is EVER a possibility?

I'm looking for a little hope.

RE: Survival without surgery

by Ducks-n-Row on Wed Jan 18, 2012 12:06 PM

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Suzanne55

Morning to you. I am glad you are there for him. Sounds like they have already started a protocal on your husband however..........It would not hurt to get a second opinion  from a different Dr or Hospital. Just to see if opinions are the same.

Hope

Dx Nov 07

RE: Survival without surgery

by saw10128 on Wed Jan 18, 2012 02:27 PM

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Look down at the post called HOPE :) 

RE: Survival without surgery

by suzanne55 on Wed Jan 18, 2012 03:04 PM

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Thank you!

RE: Survival without surgery

by cathy68 on Wed Jan 18, 2012 07:48 PM

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Is he a candidate for the vaccine trials? If my daughter qualified, I would try it.

Cathy

RE: Survival without surgery

by suzanne55 on Thu Jan 19, 2012 07:16 AM

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Cathy,

What are the vaccine trials?

Sue

RE: Survival without surgery

by Jimslovingwife on Thu Jan 19, 2012 08:25 AM

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Hi Suzanne - my husband was diagnosed in 8/10 with an inoperable gbm, and is doing well on Avastin alone now.  So, it can be done!  Cathy

RE: Survival without surgery

by gmgmaiaill on Thu Jan 19, 2012 09:53 AM

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I would recommend the book the china studies and it's not about china. It's a comprehensive study on diet and disease. I would recommend a person to read the whole book but chapter three would be of specific interest because it goes into explaining about cancer and it's causes. Chapter 3 is about what may cause cancer initially but the big thing is what promotes the cancer to keep growing. I think watching forks over spoons is also a good documentary to watch.

RE: Survival without surgery

by faith456 on Thu Jan 19, 2012 02:42 PM

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University of California has had good success with vaccine trials from what I have read.  My doctor checked into it, but I'm not a candidate.  It's experimental and they only accept grade 4 GBM patients.  U of C is also a good place for a second opinion.  I understand they have really good neuro-oncologists there.  Not sure where you are, but I have one of the best doctors in the country in Dallas, TX.  I fly down there every other month.  I have a new group page on facebook too - Living with Brain Cancer.  You're welcome to join if you like.  I'm hoping it can be a good place for people to trade information and hope and encouragement.  BTW, I'm a one year survivor of grade 3 anaplastic astrocytoma.  I am also not a candidate for surgery at this point because it is in my left cerrebellum, I would no longer walk at the very least.  I started out with 4 tumors, killed all of those and we are now killing the 5th that appeared over the summer.  Don't lose hope.  There is always hope.  Hang in there.

RE: Survival without surgery

by Edward_K on Sat Jan 21, 2012 01:29 PM

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hi faith congradulations in tour battle. I an a stage 3 asto stg 3 surviver. I am going on 10 yrs on 5 jun 12. the doctors finally told me i have beated it' oh yea mine was in the same as yours and non op just rad and chemo and a solid positive additude. when first told the realy gave me 6 mths to a yr to live. i was set back for the 1st month or so but i started my positive battle against it you have 1 life to live and i felt that you might as well enjoy and do the thinks you want. i guess try to block it out. have you read the goerge plym story. he is my hero. just type his nam in and read this mans battle with brain cancer. he is living proof cancer can bebeatten.ifyou would like to keep in touch here is my

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byehope to keep in touch

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