One patient with glioblastoma still alive nine years later
by Pasang on Wed Jan 18, 2012 05:36 PM
Greetings to all of you. I write this despair to see if anyone has the same problem my mother is facing after her total gastrectomy. She had her surgery 6 years ago. After her surgery she has had this chronic nausea, pain in her throat and trouble eating. She has done all the tests ( endoscopy, CT scan, swallow test, ENT..you name it all the test related to throat problems) that the doctors has given to see what's causing the above symptoms. They cannot figure it out and had her go home with fentanyl patch. It helps her with the pain but not nausea. Now she is back in the hosp because she hasnt been eating well because of nausea and her body malnourished. I am trying to get her off the fentalnyl. Also, anti nausea medication doesnt help her much. Any advice?
by bleeta on Thu Jan 19, 2012 06:15 AM
My husband finally received significant relief with Phenergan, in pill form. The first few days, it sedated him and he slept a great deal and then, he was past that and feeling significant relief. It did not completely eliminate his nausea, but greatly helped. To our surprise, his nausea was also helped by soft, puffy peppermints. These are individually wrapped striped mints. The ones he found were sold in a bucket at Walgreens named Red Bird Brand Soft Peppermint Puffs for $3.99 The relief he finally found was hard won and I hope his experience will translate to help for your mother. Best of health to you both.
by Pasang on Thu Jan 19, 2012 02:48 PM
The doctors now started her with Marinol. They say marinol will help with nausea and build her appetite. So hopefully that will work for her. Also, we will be weaning her off the fentanyl patch. If that doesn't work I will suggest Phenergan and have her try the mints. Thank you for responding. It's SO frustrating to see your loved ones go through so much and we can't do anything but support them. I wish the doctors will stop calling her "the mystery lady" and start finding the real cause for her nausea. Best wishes & health to you and your husband.
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