my Wife Moon

Heidi,
Stay positive!My dad had great success in a clinical trial using Gemcitabine and Carboplatin.He was being treated at Washington University Siteman Cancer Center with Dr. Benjamin Tan.His side effects were minimal.God's blessings to you.
Kate

thanks for ur thoughts god bless ur family since i last wrote my wife moon has completed her radiation 25 treatments and has had 2 chemo treatments very lite ones to enhance radiation we also have her taking noni extract
goji berry and pomogratite evtract along with rene cassic herbal tea which people say the love with great results still kinda early to see anychanges but what we have seen has been very positive she is gaining weight more energy and happier aloha joe and keep in touch

Aloha Joe!

I hope your wife is feeling better each day!
She sounds like a very strong woman.
I am also taking essiac! (Along with TONS of other supplements!) I have decided not to do chemo as I was told it WILL NOT work on my tumor...
I am now looking into a liver transplant.
I hope to travel to the Mayo Clinic very soon!
Take Care and keep me posted on her progress!
:) Heidi

Hi Heidi,

Thank you for your message of hope. My father (71) was diagnosed in January 2006. The first hospital didn't want to deal with it so we got him transferred out. The second medical center tried a resection which was unsuccessful and immediately decided that it was pretty much a lost cause, with the best chance being a clinical trial they were conducting. I was unhappy with this response so I sought out a third set of doctors who gave the same statistics but at least wanted to do whatever they could to make my dad live as long as he can with as little pain as possible. We did 7 weeks of radiation (5/week) concurrently with chemo (I'm ashamed to say I don't know which one). Anyway, we're going back in tomorrow for CT/MRI to see if any changes and as usual, I'm scared of the results. Along with the traditional route, we've been trying Noni and Yunzhi polysaccharide.

Can you let me know what alternative treatments you've looked into? Thank you in advance.

Heidi, it sounds like you are a very strong person who has a great support unit around you. I wish you and your family the best.

Richard

Hi Richard!

I hope that your dads visit went well today.
Keep the Faith!
I found out this past Tuesday that I AM NOT a candidate for a Liver transplant....Very disappointing but we can't dwell on that to long!
We must move on to something else now!
Radio-embolization.....Sounds pretty scary BUT if it might shrink my tumor enough for surgery or transplant then this is what I must do!

As far as my "alternatives"....
Essiac Tea, Kombucha Tea, IP-6, Flaxseed Oil & Cottage Cheese, Green Tea, Aloe Vera Gel, wheatgrass, ImmunePower, Calcium, Vit C, Selenium, Milk Thistle Extract,Super Enzymes, Tumeric Extract, Pau d'Arco, Liver Detoxifier and regenerator, Vit B12, Vit E, Alpah Lipoic Acid, Beta Glucon, CoQ10, LOTS of greens Lots of fruit, Organic when possible No Meats, No Sugar, Nothing containing dye, Nothing containing words that end in ....ose (ex. Sucrose)

I'm also investigating coffee enemas.....YUK!
I will be starting to use Accupuncture, Reiki, Massage Therapy, Meditation)
Hope this helps!

Heidi :)

heidi,

i'm sorry to hear about the transplant news. but you're absolutely right, have to move on. "radioembolization" - i've never heard of it. before this week, i thought that i was being pretty pro-active in trying to talk to doctors and helping my dad, but after seeing this site and especially the blogs (i spent all night reading the mccrea family blog), i feel bad that there's so much i don't know. at the same time, though, it makes me feel better that there are so many positive, caring families out there. it's like we're all in this together.

we meet next friday with the oncologist after he reviews the CT and MRI from today. we've never had a PET done. have you?

richard

i must say for a while i was very scared about what was gonna happen next but my wife has done a whole 360 with a special diet of no sugers except fruit and goji extract noni extract (not juice ) and pomograntine extract along with rene cassisc herbal tea she has been doing great and dont forget the tlc from everyone and support it is amazing what the power of love can do and positive mental attitude hedi tell me more of ur anti oxident supplement and what u belive has done the best for u i read alot about tumeric and flax seed oil any other good suggests food wisethanks and aloha from kailua oahu

Hi Richard!

I have had a PET Scan. It's no big deal! They will inject your dad with some sort of radioacitve dye, have him sit in a chair for about 45 minutes then take him into the machine. Looks just like a CT machine. The only advice I could give is to have your dad stay motionless during his 45 minute sit in the chair. Arms relaxed to the side, no chewing gum no crossed legs, etc...... The reason I tell you this is because you don't want the dye to "pool" in any area. Tell him to just be as relaxed as possible. (Meditate for that time!!!)

The "radio-embolization" has only been done on 25 people in this country so far.....I guess I will be #26! A little scary but....

Take Care and good luck at your next appointment!
Heidi

Hi Joe!

My best friend is from Hawaii (Ewa Beach) and her auntie had sent up some Xango. I also have tried Noni. Both of those were juice not extract. I would prefer extract! I also take essiac tea, khombucha tea, aloe, flaxseed oil and cottage cheese, IP-6 and tons of supplements. (see my list under "YOUR DAD". I listed most of thme there!) I'm so happy to hear that Moon is feeling much better! You're right about family and love. Without either, I don't know how people would get through hard times in thier lives!
Keep the faith!

Heidi

well my wife just got her cat scan after the radiation and chemo
and her bile is frely moving through her bile duct tubes no more bags on her side draining the bile
very good great but noe the cancer in her liver has grown not good any suggests or idea of whats happening thanks joe