Triple Negative Breast Cancer

On Jan 19, 2012 9:12 PM Lisaepstein wrote:

Anyone have this type of cancer?

I had Stage 1A triple negative in 2000. Treated with a lumectomy and radiation (no chemo). No recurrence. Best suggestion I can give you is to do your research. Then, when it comes to making treatment decisions, listen to your body. (Mine was very loud about not wanting chemo, so I skipped it.)

I have triple negative breast cancer, stage 1, grade 3.   I had 2 lumpectomies both which showed margins and a second tumor.  Then I had 4 sessions of chemo followed by a mastectomy.  There were no tumors or margins in the breast that was removed.  Also 4 lumph nodes removed with first lumpectomy were good and also 3 more when I had the maectomy were good.  So for now no further treatments.

On Jan 19, 2012 9:12 PM Lisaepstein wrote:

Anyone have this type of cancer?

On Mar 01, 2012 5:16 PM jay_horses wrote:

On Jan 19, 2012 9:12 PM Lisaepstein wrote:

Anyone have this type of cancer?

I have triple neg. Diagnose 2005, stage 3a. 18 positive lymph nodes. Ask any question like.. I will try to answer ... I had multiple surgeries,chemo and radiation. Hope u r hanging I. There!

Hi Jay,

I would also like to suggest another very good website: breastcancer.org   It also has a message board. It was founded by Dr. Marissa Weiss, a Radiologist/Oncologist atLankenau Hospital outside of Philly. She was dx about 2 years ago with BC ( after she had founded the website.I found it in 2005). She has also written a book " 7 Minutes" which tells you how to prepare for doctor visits. Doctor visits use to be 15 to 20 minutes, but are less, so prepare questions a head and have family member or friend take notes at each visit. My husband was my note taker, and I really apppreciated the extra set of ears.

Ginny

jay horses,

why multiple surgeries? 

missy

Has anybody know anything about this medication Xeloda?

thanks Missy

xeloda ---- It is an oral chemo -- I took it in conjunction with radiation ----- I am a 6.5 year post Whipple surviver.....and was recently diagnosed NED (no evidence of desease)

Glad to hear that you skipped the chemo and are doing fine!  That is encouraging! Julie

On Jan 19, 2012 9:12 PM Lisaepstein wrote:

Anyone have this type of cancer?

I am a Triple Negative Breast Cancer survivor.  Stage 2B, tumor was thought to be 1.5 centimeters but after surgery was actually 2.5.  I was told that a lumpectomy and radiation would be sufficient and that having a mastectomy would not not increase or decrease the outcome.  I personally feel that that is what the books inform the doctors and the doctors have to stay on somewhat of a book related path.  After researching and other knowledge I chose to have a double mastectomy and chemo.  4 treatments of AC and then 12 Taxol.  Was no where near as horrible as I thought it was going to be.  I worked the entire time.  After I finished treatments approximately 3 months later I had reconstruction with implants.  Today I went for my 4-year checkup.  When I first heard I was negative for everything I was happy.  Then I found out it was not as great as I thought.  But so far its not as bad as I thought when I found out.  Stay strong and be a survivor

I am a little confused. ? Did you have radiation..4 yrs ago?