Triple Negative Breast Cancer

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RE: Triple Negative Breast Cancer

by robinstamm on Mon Feb 06, 2012 03:15 PM

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On Jan 19, 2012 9:12 PM Lisaepstein wrote:

Anyone have this type of cancer?

I had Stage 1A triple negative in 2000. Treated with a lumectomy and radiation (no chemo). No recurrence. Best suggestion I can give you is to do your research. Then, when it comes to making treatment decisions, listen to your body. (Mine was very loud about not wanting chemo, so I skipped it.)

RE: Triple Negative Breast Cancer

by Verna on Thu Feb 16, 2012 05:13 PM

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I have triple negative breast cancer, stage 1, grade 3.   I had 2 lumpectomies both which showed margins and a second tumor.  Then I had 4 sessions of chemo followed by a mastectomy.  There were no tumors or margins in the breast that was removed.  Also 4 lumph nodes removed with first lumpectomy were good and also 3 more when I had the maectomy were good.  So for now no further treatments.

RE: Triple Negative Breast Cancer

by jay_horses on Thu Mar 01, 2012 05:16 PM

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On Jan 19, 2012 9:12 PM Lisaepstein wrote:

Anyone have this type of cancer?

I have triple neg. Diagnose 2005, stage 3a. 18 positive lymph nodes. Ask any question like.. I will try to answer ... I had multiple surgeries,chemo and radiation. Hope u r hanging I. There!

RE: Triple Negative Breast Cancer

by tuberose on Tue Mar 06, 2012 04:53 AM

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On Mar 01, 2012 5:16 PM jay_horses wrote:

On Jan 19, 2012 9:12 PM Lisaepstein wrote:

Anyone have this type of cancer?

I have triple neg. Diagnose 2005, stage 3a. 18 positive lymph nodes. Ask any question like.. I will try to answer ... I had multiple surgeries,chemo and radiation. Hope u r hanging I. There!

Hi Jay,

I would also like to suggest another very good website: breastcancer.org   It also has a message board. It was founded by Dr. Marissa Weiss, a Radiologist/Oncologist atLankenau Hospital outside of Philly. She was dx about 2 years ago with BC ( after she had founded the website.I found it in 2005). She has also written a book " 7 Minutes" which tells you how to prepare for doctor visits. Doctor visits use to be 15 to 20 minutes, but are less, so prepare questions a head and have family member or friend take notes at each visit. My husband was my note taker, and I really apppreciated the extra set of ears.

Ginny

RE: Triple Negative Breast Cancer

by mtnbiker on Sat Mar 10, 2012 02:14 AM

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jay horses,

why multiple surgeries? 

missy

RE: Triple Negative Breast Cancer

by mtnbiker on Thu May 17, 2012 12:26 AM

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Has anybody know anything about this medication Xeloda?

thanks Missy

RE: Triple Negative Breast Cancer

by omabina on Thu May 17, 2012 12:48 AM

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xeloda ---- It is an oral chemo -- I took it in conjunction with radiation ----- I am a 6.5 year post Whipple surviver.....and was recently diagnosed NED (no evidence of desease)

RE: Triple Negative Breast Cancer

by Julie2011 on Mon May 21, 2012 01:07 AM

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Glad to hear that you skipped the chemo and are doing fine!  That is encouraging! Julie

RE: Triple Negative Breast Cancer

by keithy on Thu Jun 07, 2012 07:02 PM

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On Jan 19, 2012 9:12 PM Lisaepstein wrote:

Anyone have this type of cancer?

I am a Triple Negative Breast Cancer survivor.  Stage 2B, tumor was thought to be 1.5 centimeters but after surgery was actually 2.5.  I was told that a lumpectomy and radiation would be sufficient and that having a mastectomy would not not increase or decrease the outcome.  I personally feel that that is what the books inform the doctors and the doctors have to stay on somewhat of a book related path.  After researching and other knowledge I chose to have a double mastectomy and chemo.  4 treatments of AC and then 12 Taxol.  Was no where near as horrible as I thought it was going to be.  I worked the entire time.  After I finished treatments approximately 3 months later I had reconstruction with implants.  Today I went for my 4-year checkup.  When I first heard I was negative for everything I was happy.  Then I found out it was not as great as I thought.  But so far its not as bad as I thought when I found out.  Stay strong and be a survivor

RE: Triple Negative Breast Cancer

by mtnbiker on Thu Jun 07, 2012 07:53 PM

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I am a little confused. ? Did you have radiation..4 yrs ago?

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