Just Diagnosed with Colon Cancer

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Just Diagnosed with Colon Cancer

by Keith_W on Sun Jan 05, 2003 12:00 AM

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I have been ill for over 5 months and just found out I have colon cancer. Are there any thoughts from others that it took too long to diagnose and the possibility that it spread because of the wait?

RE: Just Diagnosed with Colon Cancer

by Regina_G_1 on Mon Jan 06, 2003 12:00 AM

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What were your symptoms if you do not mind me asking?

RE: RE: Just Diagnosed with Colon Cancer

by Linda_S_12 on Mon Jan 06, 2003 12:00 AM

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I thought I had appendicitis. When they operated they found a small tumor blocking the opening of the appendix, it was less than 2cm. Other than that I really had no symptoms. Some mild fatigue that was it.

RE: RE: Just Diagnosed with Colon Cancer

by Betty_N on Mon Jan 13, 2003 12:00 AM

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I was really tired all of the time, I didn't feel like doing anything. I didn't want to eat most of the time. I would get dizzy, nausea, and a upset stomach.

RE: Just Diagnosed with Colon Cancer

by eric_s_4 on Tue Jan 07, 2003 12:00 AM

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my wife had the same problem and they thought it was the gall bladder but after 2.5 months of tests they found that it was colorectal cancer stage 4.

RE: Just Diagnosed with Colon Cancer

by Paul_O on Tue Jan 07, 2003 12:00 AM

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Dear Keith, I was diagnosed with colon cancer at age 32 in March of 1998. After 3 surgeries and 2 years of chemo I am stage 4. I am presently receiving Oxaliplatin and 5 FU chemo that is preventing tumor growth and metastasis. I feel well under the circumstances. It is important to be positive that you can beat it. I am sick of people telling me that but it is true. Always bring someone with you to the oncologist to listen and take notes. I was always shell shocked and barely heard a word the doctor said. Get several opinions. If I had listened to one doctor’s advice I wouldn't be here now. Stay informed on new cancer treatments like what MyCancerCompass provides. Doing this makes me feel empowered and not helpless. All sorts of new treatments are being researched that will benefit us someday soon. Try not to worry about insurance. My school insurance didn't cover anything but fortunately the hospital took care of me with its charity care program. I am on Medicaid right now. I hate being a drain on society but I like to think that once I am finished with school I will return the favor as a licensed physical therapist. I hope this message board helps and wish you all the best. Paul

RE: Just Diagnosed with Colon Cancer

by Don_L_2 on Tue Jan 07, 2003 12:00 AM

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Hi Keith; Ok, first thing, accept you have it, and now it is time to fight it with everything you have. Physically and mentally! I was diagnosed with stage 3-rectum cancer at 47. I waited to 6 months before I made a move to the doctor. They thought at first it was a stage 1. After the 1st surgery biopsy indicated advanced stage 3. Ok it hits you at first. The cancer appeared 3 years after my last colonoscopy. It really moved fast. Time to get proactive. Get a journal and start documenting everything. Time to get educated. Jump on every website possible and go to the bookstore. Here are some recommended readings: - There is no place like hope (Beating cancer in mind-sized bites) - What to do if you get colon cancer - Paul Miskovitz - Beating Cancer with Nutrition (Awesome book - Patrick Quillin) - What to eat if you have cancer (Maureen Keane) - Making Chemotherapy Decisions (David Drum) - After Cancer - A Guide to new life (Wendy Schlessel Harpham) - The Healing Path - Dan Allender PHD - Lance Armstrongs Book (Fight with cancer) Anyway, get deep into your diagnosis and the level surgery, treatments, etc. Keep records of every meeting with doctors, tests, surgery, etc. Get copies and make a binder. Request ALL doctors’ reports on everything and read them in detail and ASK questions. Investigate your doctors and their experience levels. I was lucky; I have some incredible team of doctors. They have educated me through the entire process. Ask questions, more questions, and more questions. At the end you should know everything about your illness and the treatment programs. Share this with your family and friends. You can help others. I was lucky that I was in physically good shape going into all of this. My advice, exercise, if you can walk everyday. Yes, you will be tired during treatments, but you need to exercise. I was able to walk and some days able to still jog. No matter how tire I was exercise made me feel better physically and mentally. So if you don't exercise now, put it on your list! It will help through get you over the down days. A friend of mine had stage 4 colon cancer and it was also in his lymph nodes and in kidney! He is doing incredible. Living life to the fullest. So NEVER give up and DON'T look back! You will also meet some incredible people on your journey! I have made so many new friends who are also struggling with cancer! There WILL be positives out of this experience. NEVER FEEL SORRY FOR YOURSELF! Pick yourself up each day and make progress. Touch a life of another human being and reach out to others who are struggling. And LEAN ON your closest family and friends. You will need them. Oh yes, build your faith if you haven't done already. Just remember, give yourself a year. It took me 14 months through the entire process. I just finished up my final chemo treatment week after Thanksgiving 2002. I back exercising everyday and my cancer is in remission. I just had my 1st colonoscopy yesterday Jan 6, 2003 and the results were excellent. So here was my program - 3 Surgeries - First Chemo (Continuous infusion pump - 7 weeks 24 X 7) Radiation 7 weeks 5 days/week - Second set Chemo (1.5 hours/1 per week) - 18 treatments - Many hours of waiting/blood work and other tests Most difficult period was the recovery after stomach surgery (second surgery). The 3rd surgery was the reversal of the bag. I wore a bag for 3 months until the area healed. But again, I pushed myself as much as possible through walking exercise, stretching and moving. So a little bit at a time. I was good 4 weeks after surgery. So I wish you the very best in your journey. Keep your faith strong and you will get through this. Email me any time if I can help guide you in anyway possible. Peace Don Lewis

RE: RE: Just Diagnosed with Colon Cancer

by Robin_P on Wed Jan 08, 2003 12:00 AM

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Hi again, Please - anyone with colorectal cancer - join the Colon list message board at http://ACOR.org I have been a member since soon after my surgery. I have learned so much AND received wonderful support. You can ask any question and get almost instant answers from the more than 600 members. I did not give the correct entry address in my previous post.

RE: Just Diagnosed with Colon Cancer

by Linda_S_12 on Mon Jan 06, 2003 12:00 AM

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I was diagnosed with colon cancer in June of 1998, I’m still here and still fighting. A lot depends on the stage of the cancer. You need a qualified oncologist, to learn where you are in the disease process and what your options are. That it took five months is not really the concern its where you are at right now. I have no idea where you live but you can always go to the NCI web site, http://cancer.gov or call 1-800-422-6237 and talk with some one at the Cancer Information Service. You can also call the National Cancer Information Center at 1-800-227-2345 or go online at http://www.cancer.org. A larger Hospital like UCLA or USC/Norris or a large hospital in a major city near you will probably have more options. Take care and good luck.

RE: Just Diagnosed with Colon Cancer

by Marianna_D on Mon Jan 06, 2003 12:00 AM

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I was diagnosed in March and didn't have any symptoms other than some pain in my upper stomach area. This turned out to be my colon. I had some fatigue, I was also anemic. They operated and found two lesions and put me at a stage 3. I have finished the six months of chemotherapy and am feeling really good. I will have a scan this week. It really is a guessing game. The doctors can't tell you for sure because they don't know. Are you going thru chemotherapy? Did they find any evidence of cancer in your lymph nodes? And did the cancer go through the wall of your colon? Those are the most important questions to ask. Prayer and positive thinking has helped me get through this terrible ordeal so far. Hang in there.
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