by Holly1127 on Fri Jan 20, 2012 05:55 AM
Oct 18,2011 diagnosed with stage 4 colon cancer. It has spread to liver, lungs. 18 out of 25 lymphnodes tested positive. He had surgery and now has an ileostomy bag. They could not get all the cancer out of his colon or small intestine. He had two treaments of xeloda and oxaliplatin. Had a bad reaction hand and foot syndrome. Stopped for two weeks . Started back on his chemo 1/13/2012. He will get his first CT scan 1/30/2012. Can anyone tell me how bad it gets? I hate seeing him lose so much wieght. I will pray for all of you.
by jinane on Fri Jan 20, 2012 06:31 AM
wach time i read a post... i think, why god let this happen?!!?!?!? then i say to myself well life is unfair....
donnow what to tell you, my husband cant feel his hands till now and he has stopped eloxation and xeloda 6 month ago!!! keep his morals high, go out, try your best to keep him smiling and laughin all day long (even if you have to make a clown of yourself) cook his favorite recipes (i have gained much weight as well ;p), and try not to give him time to thin abt his cancer... this is what i did for the last 10 month... and of course locking myself in the bathroom and cry z hell out!!!!!!!!!!!!!!!!!!!!!!!!!! (then goin out to b z clown and entertainer again!)... and always tell him good survival stories even if u have to invent ones !!!!
chemo sucks, but tell him that all the nasty side effects mean that the cancer is goin out ! (i used to tell this to robert each time he vomitted..it worked) we bought a cream (diabete cream, i guess its name) it is with mentol, so it kept his hands a bit cold which prevented the redness and swelling....
and besides all this praying works i guess !!
by Holly1127 on Fri Jan 20, 2012 09:30 AM
Thank you for the encouraging words. I will do just that. I have gained wieght as well. I will keep you and your husband in my thoughts and prayers.
by Holly1127 on Fri Jan 20, 2012 09:39 AM
Thank you I will try just that. I wish I knew how much time we have left together. I take day by day and enjoy those days we do spend together, but I still wonder how much time. I will keep you and your family in my thoughts and prayers. My x has never been sick a day in his life. Keep me informed on your husbands updates.
by jinane on Fri Jan 20, 2012 10:11 AM
well i was haunted by the idea of "how much time left", until many persons i know died during these last 9 month and they were the healthiest pple in the world, heart attack, car accidents and falling from a high ladder (who z hell dies from falling over a ladder while fixin his curtains!!! and this man died actually from fallin from a ladder.... and by the why, this same man came to visit us when my husband was first diagnosed and he told us that 4 years ago he had both prostate and lungs cancer and he survived them and he is ok now....and he fell from a ladder and died))))!!!!!!!!!!
so i try not to think about "time left" i think abt current time.... (although i dont deny, the idea still hovers inside me) bcs we all could die in a second and by surprise !!!
enjoy your "now" u can never tell anything abt tomorrow.... and dont read the "surviving rates" statistics on the net, they r bullshit( sorry really sorry abt z langage!! but this is what the onc keeps on telling me)
by jinane on Fri Jan 20, 2012 10:20 AM
well i was haunted by the idea of "how much time left", until many persons i know died during these last 9 month and they were the healthiest pple in the world, heart attack, car accidents and falling from a high ladder (who z hel dies from falling over a ladder while fixin his curtains!!! and this man died actually from fallin from a ladder.... and by the why, this same man came to visit us when my husband was first diagnosed and he told us that 4 years ago he had both prostate and lungs cancer and he survived them and he is ok now....and he fell from a ladder and died))))!!!!!!!!!!
enjoy your "now" u can never tell anything abt tomorrow.... and dont read the "surviving rates" statistics on the net, they r nothing... at least i keep tellin this to myself
by Holly1127 on Thu Feb 09, 2012 11:17 AM
had his scan it showed left lobe of liver3.1x4.1 cm, right lobe3.5x3.5 cm 1.4x2.03 cm adrenal. plus in left lung, lymph nodes, ileium and still have in colon. The cancer is metastaticized everywhere. He has laid for three days just sleeping all the time. I.m going to take this as bad but not sure how bad. Can you please enlighten me on what this scan has shown? the doctor didnt tell us really anything. i started asking questioned and he seemed he got pissed off and was annoyed by my questions. hope everything is going good for u and your family.
by jinane on Thu Feb 09, 2012 01:37 PM
well, according to our onc, lung mets rnt so important... liver is much more important...is he on chemo?? is he responding well t chemo? this is what counts!
my husband finished 8 cycles of chemo 6 month ago and next tuesday we will be back on chemo again, cos he still have nodules left on liver and small ones on lungs. im having a big party on saturday with all his friends invited.
if the onc is not answering, go mad in his face!! this is what i did first (he didnt tell me everything, and each time i used to ask him smthg he used to say never mind...so i went shouting all over in his face! and we became friends since then :oP) now he tells me everything, saying (jokingly) that he usually doesnt tell patients and care givers all these info, but he know i will go mad and keep on calling him if he didnt so!!
by Holly1127 on Thu Feb 09, 2012 03:22 PM
He started out on 7 xaloda a day then dropped down to 5 day because of hand foot syndrome. Now he is on four a day having problems with neuropathy Sleeping 98% of the day is that normal? We have had to stop chemo twice because of his kidneys were failing. He has only been doing chemo this is his 4th month. I am glad to hear your having a party sounds like things are going good for you. Take care
by jinane on Thu Feb 09, 2012 05:27 PM
no actually things arent that good, my husband's cea was 14 in 2 month it became 200 !! but next week is his birthday, valentine's day and his 1 year diagnosis of cancer, but he is starting chemo so i will throw the "party" this saturday!
to encourage him before chemo... when my husband was on xeloda and eloxating, he used to sleep a lot, wakes up at 9, had his breakfast, then sleeps, then lunch then sleep then dinner then sleep !!! the neuropathy is caused by eloxatin i guess not xeloda... fatigue is caused by both !
u should tell HIM to desire food, cos food will do miracles to him... tell him that you read it somewhere , a new research or soooo ... tell him that people can be cured by food!! so he will fight to eat and when he eats he will have some more energy !
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