Anyone else here have IgA immune deficiency?

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hummingbird9 hummingbird9
(Inactive)

Anyone else here have IgA immune deficiency?

by hummingbird9 on Sun Jan 22, 2012 08:13 PM

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I have Mgus IgG kappa and recently diagnosed with IgA immune deficiency...anyone else with any type of cancer have this?  Does anyone have any info on it?   I understand it masks Celiac blood test and my Dr. has told me to go on a Gluten free diet and I do feel better. 

RE: Anyone else here have IgA immune deficiency?

by veggienft on Sun Jan 22, 2012 10:13 PM

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Hi Katherine, I noticed a thread you started in the MGUS board. You're more likely to find compatriots on that board.

As always the real question is, why did you ask the question? If you're considering starting eating wheat, that would amount to ignoring what your body and doctor are telling you. I think it's a near-miracle that you have a doctor who is so up to date that he recognizes the connection between wheat ingestion and IgA deficiency.

As always the detractors dictate what can be claimed about medical facts. One symptom of celiac disease is IgA deficiency. But IgA deficiency is found in all wheat diseases .....in other words, all autoimmune diseases and autoimmune conditions. Why do these statistics not get reported? Because detractors in the medical establishment refuse to recognize the connection between ANY of these non-celiac diseases and wheat ingestion. If changing diet cures these diseases, then why would you need a doctor?

I'm not about to urge you one way or the other. You're a free person. However, I will make this assessment. If you abstain from eating wheat your chances will improve. If you ignore the good advice of your body and your doctor, your chances will diminish.

Your choice.

hummingbird9 hummingbird9
(Inactive)

RE: Anyone else here have IgA immune deficiency?

by hummingbird9 on Mon Jan 23, 2012 01:25 AM

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Thank you very much, Veggienft.  I had gone GF twice and then did a challenge and blood test but it always came back negative.  I always felt less brain fog and better energy while off wheat.  I don't care anymore about a blood test I am GF for life now.  I am even in the process of buying a toaster just for my GF bread and bagels.  I am going to treat this as if I am Celiac. 

My family is always on board and tonight we all had brown rice pasta and GF brownies! LOL  I am not cooking two dinners and I barely have enough energy to cook one.  Funny if I bake with wheat and GF its the GF stuff that goes first in my house :)  There really are some very good recipes out there. 

I pulled out all my blood work for the last 10 years and there it was, year after year - but NOT ONE doctor told me what it was and I actually (feel pretty stupid) thought it was to do with the Mgus. 

I finally after waiting a year + got into the Women's College Hospital Enviromental Clinic and this is where the Dr. who saw me pointed it out.  I am being referred to an Allergist cant get in until April for food and further immune testing. I've never been GF seriously and if I can get well then I will do whatever it takes.  I choose to live my best life possible.  I have a sister with Stage 4 Breast Cancer, one with Non Hodgkins Lymphoma and my Dad passed 2 years ago with Prostate Cancer.  Most of his sisters and parents passed from various types of cancer including breast, ovarian, bladder, colon.  With a family history like this I am very aware that changes like diet can make all the difference in the world. 

Thank you so much!   

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