Snuc

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Snuc

by Cecei on Sat Aug 12, 2006 12:00 AM

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There are long term survivors. They just got on with their lives and do not chat about their cancer online anymore. Try Harvard's Mass General for proton therapy and try Midwest Proton Radiotherapy Insitiute in Bloomington, Indiana (MPRI), Dr. Allan Thornton (area of research--sinus cancer--internationally recognized) Harvard has treated many snuc patients with great and long successes (Thornton treated people there before moving to Indiana University's Cyclatron in Bloomington. Go to the MRPI website. Do a thornton harvard (or mass general) sinus cancer protocol search. Call and talk to the proton centers. It might be helpful.

RE: Snuc

by garfunkle on Mon Oct 01, 2012 08:08 PM

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Hello Cecei, my daughter recently had a 9 hour surgery for

SNUC.  They did not get the boarders and will start chemo & radiation next week. It involved all sinus cavities and was pushing up on the frontal lobe of her brain.  She i s 41 and we all just are wanting to talk to people who have had this cancer.  So glad to hear there are long term survivors.  She had her surgery at Oregon Health Sciences Univ. in Portland, Or. 

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