On Feb 02, 2012 12:35 AM MarcyS wrote:
Mary-
What a great thought it was to post cancer centers . . . and so caring of you.
We went to Seattle Cancer Care Alliance, Dr. Tykodi and I can't speak highly enough about the care Orville received. Calls returned within an hour at the longest and just overall, a very caring group.
By the time he was diagnosed he had lost 50 lbs, stage IV, grade IV, football sized tumor engulfing 1 kidney, mets in the other kidney, adrenal glands and both lungs. We almost lost him. He went from that to remission. This was because of the care and guidance we received. (Not to mention massive prayer chains)
I am so sorry to hear your husband is not doing well. My heart goes out to you and him. Keep the faith, my prayers are with you.
Marcy
Hi Marcy,
I know someone else asked the same thing and we're all looking for that one magic bullet:) What did they do for him? I asked my husband about an hr ago if he'd consider surgery and he said Oh God no. My doc seems to know what he's doing, but he is on so much medication I think it all kind of slips by him. He said he feels good, but yet he doesn't get off the couch or out of bed.
The terrible daily every 2 hr vomiting an/or diahreaa has ceased, but he's now losing weight quickly. He was down to 161 from 176 last week and today I weighed him and he was in the 156 range. I don't understand him or any of it really. He's always given crazy answers even to the nurses who ask him what his pain level is. He can say 0 and 2 mins later an 8.
He's also a handful to care for I tell ya. We had an incident where he argued with my son and took his pillow and a blanket and said "Come on". So stupid me I got in the car and said well where to and He said to a motel. I said no and we wound up at my sister's house. If that wasn't bad enough he got dressed and put his coat on, took his pillow and blanket and started for the car again. I didn't want to disrupt anyone's life anymore so I drove around with him for a few mins. He insisted I take him to his sisters 3 hrs away. I said no, so he said well we can sleep in the car. Then he got out of hand and decided if I wouldn't take him, he'd walk. It was freezing and snowing, he made it 2 blocks and I was trying to keep him in sight because he kept going in and out of people's yards trying to avoid me.
I figured he was going to get shot or freeze to death so I dialed 911 for an ambulance and 2 nice cops came and talked him into getting ito their car. they took him to the hospital. They explained to me that they would have to restrain him and I told them to be very gentle with him as his tumor in the belly was so large. Someone had to restrain him and I couldn't do it and drive. He hated me for a few hrs that night, but they rearranged some of his meds and sent him home after a couple of days.
What a nighmare as I've said. I was crying that it had to come to that, but his well being was at stake and little did I know in all of the confusion, I was going down a one way street the wrong way as the cops so nicely told me.
If I survive this, it will be a miracle. I've lost about 25 lbs. and am not well either.
So that was our exciting New Yrs and neither of us had been drinking. lol
Got to have some sense of humor before I lose it completely.