diarhea post whipple and scared

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diarhea post whipple and scared

by janet10 on Wed Feb 01, 2012 08:16 PM

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It has been almost 9 months since my whipple surgery for pc on the head of the pancreas. I had a ca19-9 taken on thursday 1/26 and it was 13 well within normal range and the doctor was not concerned. Adjuvant chemo finished in December.  Have a ct scan appt. in early April.

Last night I ate white meat turkey breast tacos with sour cream and have been sick with abdominal cramping and diarhea. Besides having the normal digestive issues this is a new symptom for me.

Should I be worried or is this from eating the spices in the tacos? I have found that I am lactose intolerant since before the surgery and wondering if it could be from the sour cream?

I am very concerned and hopefully, those that have dealt with this deadly disease can understand.

I'd like to know your thoughts.

RE: diarhea post whipple and scared

by chuck1943 on Wed Feb 01, 2012 09:54 PM

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Sounds like you found something you might not want to eat again. If your intolerant to dairy than the sour cream might be it, I still find things I shouldn't eat after two pluses years, like onion rings and fish and chips but once in a while I do any way, pay the price later but boy is it good at the time.

RE: diarhea post whipple and scared

by TimothyG on Thu Feb 02, 2012 02:07 AM

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I am a year post op and still on occasion have issues with cramping and diarhea.  Sounds like a digestive issue to me. Hope it clears and you return to normal, whatever that is!

RE: diarhea post whipple and scared

by judithkay41 on Thu Jan 17, 2013 01:23 AM

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On Feb 01, 2012 8:16 PM janet10 wrote:

It has been almost 9 months since my whipple surgery for pc on the head of the pancreas. I had a ca19-9 taken on thursday 1/26 and it was 13 well within normal range and the doctor was not concerned. Adjuvant chemo finished in December.  Have a ct scan appt. in early April.

Last night I ate white meat turkey breast tacos with sour cream and have been sick with abdominal cramping and diarhea. Besides having the normal digestive issues this is a new symptom for me.

Should I be worried or is this from eating the spices in the tacos? I have found that I am lactose intolerant since before the surgery and wondering if it could be from the sour cream?

I am very concerned and hopefully, those that have dealt with this deadly disease can understand.

I'd like to know your thoughts.

 I am almost three years out from the Whipple and still have diarrhea bouts fairly often.  Don't digest things well in spite of massive doses of digestive enzymes that I take.  Seem to eat a lot more than before, but don't gain weight.  I take Lomotil for the diarrhea( up to 8 daily), and also find I deal with a great deal of gas.  But I'm here, and I can deal with the side effects so far.  Good luck!  judithkay41

RE: diarhea post whipple and scared

by tsmith on Thu Jan 24, 2013 04:28 PM

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I have bouts with my tummy 2 1/2 years after a distal pancreatectomy. I take zenpep enzymes and they may help some and I don't really watch what I eat as I should, I love food! Gas is terrible (my poor wife) and I have to be careful to have a restroom handy after I eat but I manage. That said, I think this is just normal due to lack of digestive enzymes.

RE: diarhea post whipple and scared

by shelby1 on Thu Jan 24, 2013 04:41 PM

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Hi,

We switched to Creon, but the most effective one is the one at night for snacks. Also, when out absolutey no fats or fried food. Took trial and error but no more problems since the creon and fat and fried rule. P.S. Lettuce was also an issue. Even gas subsided!

RE: diarhea post whipple and scared

by RichardL on Sun Jan 27, 2013 12:16 PM

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You do not need to worry about this, although I know how scary diarrhoea can be pos- Whipple. I still have occasional trouble balancing my Creon with the food I eat, but in general I have it under control. . 
 For me, the following is true:
I needed much higher doses of Creon than I had thought (you cannot overdose, and it turned out I needed more than double the original guestimate by my surgeon).
Creamy and fatty foods in general require more Creon.
Even a tiny snack, e.g. an apples, requires Creon. 
You may find it useful to have both 10,000 and 25,000 Creon available.
Things can still go out of balance, as nothing can replace the efficiency of the pancreas.
But, if your tumour count is down you are OK - this is just a mechanical hitch.
Good luck and warmest wishes....

RE: diarhea post whipple and scared

by bestfriendmom on Mon Jan 28, 2013 01:53 PM

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my mom is 1 year from her whipple and still has horrible diaherra.  You did not say if you are taking Creon with your meals. If you are not on Creon you should discuss taking it with doctor.   I know that helps her a little.  She also has to take liquid opium when the diaherra gets out of control.

Good luck with your CT scan in April hopefully you will come back with NED.

RE: diarhea post whipple and scared

by whyfly on Tue Jan 29, 2013 02:22 AM

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2 years post whipple..i eat most everything but onions,i take no meds, have no pains, returned to work 6 months post opp, i get very tired by the end of the day, early to bed early to rise

RE: diarhea post whipple and scared

by luvbug143 on Wed Jan 30, 2013 11:27 PM

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My mom is 1 month post whipple surgery for stage 2 pancreatic cancer/head of the pancreas (65yrs).  She is feeling great, going on long walks, no pain, no diahrea (yet).  She is on a very strict organic diet: Juicing raw veg/fruits ( lots of carrots juice) , lots of water and Rejuvelac to help with digestion.  She has only lost 5 pounds and has been off the feeding tube for 2 1/2 weeks.  I really hope she stays in this good health.  I think alot has to do with her staying positive and in a non-stressful environment. 

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