One patient with glioblastoma still alive nine years later
by tricias76 on Sat Feb 04, 2012 03:40 AM
by eastwest on Sat Feb 04, 2012 12:33 PM
Hi Tricias I remember the not knowing what would happen next and the exhaustion while I was caring for my husband. The rest of the world seemed to go on normally while we were busy just trying to make it through each day and whatever it brought.
I am glad you were able to take a leave from work. Thankfully I got the lay off notice from my job 3 months before Phil was correctly diagnosed as I know I would have tried to work and take care of him and that would have been impossible.
There is anticipatory grief as you know. I wish I could say it prepared me for his actual passing. But even being a hospice nurse for 18 yrs frankly didn't help when it occured.
YOU will get through this because you have to. Some people will be there for you though many who don't get it because they have not been there themselves will say or do the wrong things. We will be here. hugs, Irene
by tricias76 on Wed Feb 15, 2012 10:08 AM
by tsrwalker on Fri May 25, 2012 12:07 AM
I wish I had found your post earlier. While I was taking care of my mom for the 3 months before she passed I felt like nobody understood. I knew I didn't have much time left with her and since I didn't know how much I didn't want to waste any of it. she passed on May 9th...I saw her take her last breath. I remember the one time that I spent a few hours away from her since the family said it was unhealthy not to take a break. My finance took me to an Angels baseball game and I couldn't even enjoy the game. I remember looking around and feeling angry that so many people could be happy and enjoy themselves while my mom was dying and the world didn't seem right.
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