Radiation Mask

24 Posts | Page(s): 1 2 3  Next 

Radiation Mask

by Janeg on Mon Aug 14, 2006 12:00 AM

Quote | Reply
My father-in-law has advanced sqamous cell cancer of the tongue and neck. In order to receive his radiation treatments, he has been fitted with a metal mask that he must wear each treatment (5 days a week for 8 weeks). The problem is he is extremely claustrophobic, and even with mild sedation is unable to endure the treatment. Has anyone else experienced this, and does anyone have ANY suggestions for him? Thank you so much!

Radiation Mask

by Cavman on Mon Aug 14, 2006 12:00 AM

Quote | Reply
I have thought and thought and can`t come up with much. This is a problem that has to be remedied now. In my 7 weeks of radiation I had one problem where I got that way and almost didn`t make the session because of being given too much morphine. I would have him try listening to his favorite music during the time. It helped me alot. I also always counted the times the macine moved to a new position. Trying to help. Maybe a stiff drink or two. Ron

Radiation Mask

by Pauldbld on Tue Aug 15, 2006 12:00 AM

Quote | Reply
Hi Janeg, I had sixty sessions of radiation for stage IV squamous cell carcinoma located at the base of my tongue and was required to wear a mask during treatment. This mask is necessary for exact x-ray location and without it the patient may move and the radiation may not be as effective as it should be. I too am claustrophobic, but not extremely, and was able to complete all of my treatment. What I did was close my eyes and try not to think of where I was. Your father-in-law must think of what the consequences are without the radiation treatment and this might help him endure them. The sessions are only about ten minutes long, which seems like an eternity while you are lying there but they are necessary. I wish him the best of luck.

Mask

by Junesurviving on Fri Aug 18, 2006 12:00 AM

Quote | Reply
I've been through innumerable mri's and 2 separate mask treatments. I always thought of myself as clostrophobic but found that if I lay down on the table, take a moment and they allow me to initially fit my mask on my face, I fair much better. Also I use visualization techniques when the radiation starts imagining the power is a waterfall and I am under it be re-energized with the minerals that will was away the poisens in my body. Hope this helps.

Mask

by Janeg on Fri Aug 18, 2006 12:00 AM

Quote | Reply
Thanks so much! This sounds like something he can do. I'll pass it on!

RE: Mask

by Mark_C_2 on Wed Jan 21, 2009 12:00 AM

Quote | Reply

I got the "mask" last week and just did a CT with the "mask".  Weird is all I gotta say.  I hate being confined like that but am glad to hear form folks lke you.  I start my treatments Feb 10, 08. 

Any of you folks still around on this log?  Love to hear how your doing:)

 Mark C

RE: Mask

by skiffin16 on Sun Jan 25, 2009 12:00 AM

Quote | Reply

 

On 1/21/2009 Mark C wrote:

I got the "mask" last week and just did a CT with the "mask".  Weird is all I gotta say.  I hate being confined like that but am glad to hear form folks lke you.  I start my treatments Feb 10, 08. 

Any of you folks still around on this log?  Love to hear how your doing:)

 Mark C

Mark, I'm new to this log as well....

I have only had the mask made, and will need to where it tomorrow Monday January 26th, 2009 for the inital PET scan.  I was pretty shakey during that process which took about 15 minutes or so.

I'm hoping to figure out a way of dealing with wearing it as well.  After the PET scan tomorrow, I won't wear the mask again until I start concurrent chemo and radiation.  That should be around nine weeks, as I start chemo treatments this Thursday for that amount of time.

From what I understand, during the concurrent period, I'll have radiation treatments five days a week for seven weeks.

John

 

RE: Mask

by skiffin16 on Sun Feb 08, 2009 12:00 AM

Quote | Reply

Mark C....

I haven't heard from you for awhile, have you started your treatments yet? I start the chemo tomorrow (Monday 9 Feb 2009).  Nervous to say the least.... I did have one more bout with the mask, during the PET scan.  I had to wear it for 8 minutes after the 30 minute PET scan, it was a lot easier than the first time, but it still was uncomfortable. I managed to keep my composure and deal with it.

John G

 

RE: Mask

by wingman723 on Thu Mar 12, 2009 12:00 AM

Quote | Reply

I am new to this forum,but not to these treatments.

On 1/21/2009 Mark C wrote:

I got the "mask" last week and just did a CT with the "mask".  Weird is all I gotta say.  I hate being confined like that but am glad to hear form folks lke you.  I start my treatments Feb 10, 08. 

Any of you folks still around on this log?  Love to hear how your doing:)

 Mark C

I was diagnosed with Estesionueroblastoma (aka Olfactory Nueroblastoma) in November 2005.  I had a mask created for the 30 or so radiation treatments.  That was a facial mask -- covered the forehead to the neck.  That process was not too bad. 

Recently, I've had a recurrence in the left neck.  Fifteen lymph nodes were removed; three of them affected with the same Olfactory Nueroblastoma.  A 12cm x 12cm muscle was also removed as the thing had broken through one of the nodes and was invading the muscle.  Today I had an appointment to have another mask created.  This one was not nearly as calm (relatively speaking) as the first go.  This time the arms were pulled down towards the feet with long bands around the wrists that were tensioned by strapping around the feet.  This mask was also larger -- from the forehead to just below the shoulders.  It is a bit unnerving even for those of us who do not consider ourselves claustrophobic.  You've absolutely got to put yourself [mentally] somewhere else and cannot focus on what's occuring at the moment.

The biggest challenge I had was that my neck is still quite tight from surgery and laying flat with the head all the way flat puts a little strain on the neck.  That tightness combined with the difficulty in swallowing in that position made me feel as though my throat was clogging at times when I'd swallow with the mask on.  My biggest fear is suffocation -- not being able to breathe.  Anyone else deal with this?  Any suggestions?  My next round of treatments (another 30 or so) begins in just over a week.

 

RE: Mask

by Mark_C_2 on Thu Mar 12, 2009 12:00 AM

Quote | Reply

I recommend bringing in your own CDs and listening to music you enjoy.  This helps me "go someplace else" while getting treatment.  Also have them turn a fan on.  I find if I'm a little cold it helps.  Good luck:)

Mark C

24 Posts | Page(s): 1 2 3  Next 
Subscribe to this message board discussion

Latest Messages

View More

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.