One patient with glioblastoma still alive nine years later
by chifan on Tue Feb 07, 2012 04:33 PM
Hi again guys...can anyone tell me if they had one of these and is it worth getting? my husband is undecided, he is still in hospital from dehydration and nausea but cant wait to get home.... doc wants to monitor what he eats today and see if he keeps it down,and will see him again tomorrow about the tube, he is finished w/ the chemo for now, but is still so nauseous, I think he should get the tube to keep him nourished and from feeling so weak...this should help w/ this right? How do they put it in, and where does it go, directly into your stomach? I just feel so bad for him..he wants to eat so bad and all they give him are liquids,...so please help us out here guys...any info would be much appreciated!.......THANKS!!!!
by jAAvs on Tue Feb 07, 2012 05:25 PM
In my opinion, it's worth it. i got a G tube. I think it saved my life, I could not keep anything down. They would feed 2000 calories at night. It went in easy, it came out with a little pain, buy not so bad. Would do it again if necessary. Best wishes, Jason
by chifan on Tue Feb 07, 2012 06:37 PM
Aww, thank u Jason,....w/ that being said I will advise my husband to go for it!!!!
by keith45 on Tue Feb 07, 2012 06:53 PM
I believe a feeding tube is most important. They almost stopped my treatment because I was losing to much wait. I fought the feeding tube and my wife and daughters said get it and get it now. It honestly saved my life..I went from 210lbs to 130lbs after treatment and that feeding tube was heaven sent I tell ya. I was never so happy to have it and it made thing so much easier and made me feel better too. It also took so much stress off my family. So I would say go for it. It will change things for the better.
Keep Up The Fight.
by rick51 on Fri Feb 10, 2012 03:00 AM
The body will tell what is needed. Four years ago this month was my final treatment for SCC of the tonsil. I never did have the tube, but was told if I lose another 5 pounds I had to have it. Fought hard, didnt want one and got by w/o it. But of all the things to think about, the feeding tube should not be one of them. If he cant keep things down and keeps losing weight to an unsafe situation, then just get it. Plenty of other concerns.
-God bless and good luck
by lovedad on Fri Feb 10, 2012 09:16 PM
My dad had a stint put in on Monday so he could eat. It did not work. Dr. adusted stint on Tuesday and my dad's body rejected it. Stint was removed on Thursday and a feeding tube put in. My dad is down from 174 to 140ish. Afraid he is so weak that they will delay starting chemo. He was very upset and crying when doctor told him he needed it. It was a hard day. The tube comes out his nose and goes down throat right to the stomach. Putting Ensure and water in the tube every 2-3 hours.
by doingfine on Fri Feb 10, 2012 10:52 PM
Too bad they cannot give him the J-tube. J-tube feeding is quite easy and I had my canned nutrition at night while I slept. I had the tube down the nose when they had to pump my stomach before I got the j-tube. It works, but it is uncomfortable.
Somehow this post is up twice. I wrote my experience with the tube on the other post called Need Advice. Keep reassuring your Dad. I don't know how old he is, but there is hope.
by hstanisci on Wed Feb 22, 2012 03:20 AM
My fiancee had a feeding tube in his stomach.It was not a bad procedure at all and we did not regret it! It helped him keep weight on while he couldnt swallow much. It is impt to keep up his strength to fight this dreaded, horrid monster!!!He will get used to it and it is no big deal after a lil gettin used to!!Eventually he got a stint which also helped.Good luck to you both...prayers...
*Ps.in yr spare time..read the "knockout" book by Suzanne Somers...gr8 resource:)
by LisafromOley on Tue Feb 28, 2012 08:02 PM
If your husband has got the feeding tube, you might want to check out the Oley Foundation atwww.oley.org . There are many resources available (all free) for people on home tube or IV feeding. There's lots of info on the Web site, volunteers available to talk on the phone, a newsletter, and more. You can always contact the Oley offices with questions as well. Good luck with the tube!
by crayfish on Tue Feb 28, 2012 11:02 PM
Just wanted to say that I luckily found the Oley site while Googling for info one day and found it very, very helpful. It answered all sorts of questions I had in a way I could understand. Thanks Oley Foundation.
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