Stage4 Colon Cancer w/lesions on liver

Well I just passed my 533rd Day from being diagnosed with stage4 colon cancer and I am still going strong. I do have my up and down days dealing with the chemo treatments and the side effects that comes along with it. If I would have listened to the Gastroenterologists I had I should have been gone somewhere around 441 days ago. Just goes to show no one, but no one, can tell you how much time you have left. I have my family and my faith by my side. I will never give up the fight of this disease. We don't know when there will be a break through or new medicine in the treatments for it. I will leave it my Lords hands. He has gotten me through many hurtles in this fight. So all I have to say too everyone is "Never Give Up…Never Ever Give Up"

On Feb 11, 2012 11:30 PM rob0852 wrote:

Well I just passed my 533rd Day from being diagnosed with stage4 colon cancer and I am still going strong. I do have my up and down days dealing with the chemo treatments and the side effects that comes along with it. If I would have listened to the Gastroenterologists I had I should have been gone somewhere around 441 days ago. Just goes to show no one, but no one, can tell you how much time you have left. I have my family and my faith by my side. I will never give up the fight of this disease. We don't know when there will be a break through or new medicine in the treatments for it. I will leave it my Lords hands. He has gotten me through many hurtles in this fight. So all I have to say too everyone is "Never Give Up…Never Ever Give Up"

Hi rob, I am also dx colon sigmoid cancer with several mets to all segmentsbof the liver on 31 st dec 2011. No resection of primary. Tumour and liver seems non resectable due to mets In all segments as of the date of dx. I started FOLFOX and erbitux treatment and have finished 3 cycles FOLFOX so far. Have got side effects of rash, neuropathy, low WBC etc . Pl share your treatment details and also of anynsupplements etc that u took and are taking which help. I am based in India and Docs here have nomidea of supplements and any consecutive alternate therapy, and discourage anything but what they have prescribed. So, anynsuggestions, details of your treatment etc will help me immensely. Shitul

Love it, thank you for sharing.

 

Hi Shitul, I was on the first round of treatment for Colon Cancer until May of 2010. I started to get a lot of pain at the site of the cancer in my colon. We had to use some strong narcotics to help with it. In June I whet through with surgery to remove the section of colon and Stent to see if this was the cause for the pain. It was a risky decision to do this but had to do something. We removed 12” of colon along with the stent that was placed to keep the colon open. Well as you can see I came through it very well. I have not had any pain nor do I need any pain meds now. I do use Celebrex on occasion for my athirst I have in my lower back and it works for the, I’ll call it discomfort, from the “TACO BUTT” you get. It is just a stronger NSAIDs then Advil-ibuprofen. Do not take any Acetaminophens; they are very hard on the liver.I do have meds to take for the nausea and neuropathy. They do work to a point. If you are no the meds that you become sensitive to cold or hot just try eating things that are at room temperature. I was drinking a supplement drink called “EMSURE”. It is a protein drink that is high in protein and low in fat. Also watch your potassium levels. Potassium replacement is not a fun thing. It takes about 4 hours added to the chemo treatment time. I’m not trying to scare anyone but these are things I have had to do so far and you can get through it too.I’m not sure what the exact first line of treatment I started on, because it is over a year ago, but I have been on this regiment since just before surgery of the colon resection.

Premeds:Aloxi,Decadron (put on hold for now. I am at my ideal weight now),Atropine (We will be changing this one next treatment)

Medications:5-FU CADD,Avastin (on hold for last 2 treatments),Camptosar,Leucovorin,

Injections:5 days of Neulasta shots to  help bring up the PLT and NEUT counts

I hope this helps you out.

Here are some sites I use for research: Just don’t believe everything you read on the web

http://www.cdc.gov/

http://search.pennstatehershey.org

http://www.hopkinsmedicine.org/

Congradulations to you sir.  You are a fighter. God bless.

Ron

i wish you luck and a veryyyyyyyyyyyyyy looooong life

Ask to your oncologist if a chemoembolization or a radiofrequency ablation are possible for your mets in the liver.

You should not forget as well to get information about clinical trials available in your area or a little further (google "clinical trials + colon cancer or liver metastasis+ name of the biggest city close yours) and ask to your doctor

http://www.cancer.gov/cancertopics/pdq/treatment/colon/Patie

Proactivity, love and faith are the best ingredients to beat the odds.

Hang on !

Thank you for your suggestions. I will talk to my oncologist on my next appointment.

On Feb 11, 2012 11:30 PM rob0852 wrote:

Well I just passed my 533rd Day from being diagnosed with stage4 colon cancer and I am still going strong. I do have my up and down days dealing with the chemo treatments and the side effects that comes along with it. If I would have listened to the Gastroenterologists I had I should have been gone somewhere around 441 days ago. Just goes to show no one, but no one, can tell you how much time you have left. I have my family and my faith by my side. I will never give up the fight of this disease. We don't know when there will be a break through or new medicine in the treatments for it. I will leave it my Lords hands. He has gotten me through many hurtles in this fight. So all I have to say too everyone is "Never Give Up…Never Ever Give Up"

hi rob0852.  god bless you. you are so brave.

Hi Rob

My husband was diagnosed sept 2011 with stage 4 with mets to liver and lungs and adrenal gland. He had been complaning to his Dr. since feb 2010 the dr. did not seems to take my husband serious until this september when he ordered a ultrasound because he was so sure that it was gallbladder causeing my husbands pain. he even blamed the  constipation rectal bleeding on the IB prof he prescribe for pain that he said was a muscle pull  back in 2010.  my husband is currently going through chemo since surgery is not an option. they have given him 18 months with chemo but he seems to be doing ok.   your story gives me hope god bless you....

Diana