One patient with glioblastoma still alive nine years later
by paysongeorgi on Wed Feb 15, 2012 01:46 AM
Scorry I have not posted lately. WE MOVED AND RETIRED TO our cabin and doing a lot of remodeling. Just had my 3 year pet scan and all is fine. Yhanks be to God! Right now we are getting a little snow and it is so pretty on the pine trees, Most of the time I am feeling good,I do have a feww bad days, but they are far apart, Still taking pain meds and working with the doc to reduce the dosage. Everytime I see the cancer doc he calls me a miracle and I think he is right, No chemo or radiation, and I am eating beetter due to my pain doc giving me an antidepressent. Thanks to those that sent me private notes. Love you all and hope all is welll with those fighting the battle.
by MariaL on Wed Feb 15, 2012 12:14 PM
It's great to hear from you and that you are now retired and continue to be cancer free. Remodeling a cabin must be a lot of fun, although snow I can live without. We've are having a very usually warm winter in Upstate NY with only a few dustings of snow and no major snowstorms -- yet.
by doingfine on Wed Feb 15, 2012 10:50 PM
Georgi, It is so good to hear from you. I cannot remember how many years I have been communicating on Cancer Compass, but I do know you have been through a very difficult time. I am so happy that you are doing well and things are looking up. Touch base with us once and a while just to say hello. Yes, our prayers are being answered. We love you too!
by rickjenn on Wed Feb 15, 2012 10:51 PM
Hi Georgie, It is really good to hear from you and to know that things are going well. I'm also glad to hear the doctor is working with you on reducing the pain meds. Have fun being retired in a new location. Keep up the good work. Rick
by pipernickel on Thu Feb 16, 2012 05:28 AM
I'm so glad to hear from you and I'm happy that you are doing well. I hope that you enjoy your new home.
by drn56 on Fri Feb 17, 2012 12:41 AM
I am so glad you are doing well. I was really worried when we hadn't heard from you in so long, but thankfully everything is ok. Enjoy your retirement!!
by andy2009 on Sun Feb 19, 2012 04:53 AM
by jkavzig on Wed Feb 22, 2012 09:59 PM
Georgi and all,
I hope you don't mind that I join in. I don't have esophogeal cancer, but have been recently diagnosed with Barrett's after my routine three year endoscopy to monitor chronic esohogitis. I am so worried and I am doing everything I can to take preventative steps. My pathology reading was indefinite for dysplasia. So my doctor wants to treat the inflammation and do another scope with biopsy in a few more weeks. He put me on a daily dose of Dexilant which made me extremely tired. I have 5 daughters and I honestly felt anemic and could'nt function like this. So now has me on Prilosec now until I have my next biopsy on March 23rd. I am still having fatigue but not as bad as Dexilant. But it's still too much for me and I have been having a sharp pain under my rib cage that wakes me up at night only when I am in bed lying down. I am worried that the Prilosec is doing damage. Would also appreciate knowing some warning signs that I need to stay on top of. I never had bad heartburn. The only reason I found out I had esohogitis 5 years ago is because I was taking Erythromycin and it tore up my esophogus and I had to be scoped. At that point my doctor said that I had this condition for a long time and said I had a hiatal hernia. I am worried that because I have "silent GERD" I am unaware if my condition is getting worse. Thanks for listening and I would love any advice or feedback you may offer. Prayers for all of you!
by doingfine on Wed Feb 22, 2012 10:28 PM
I was totally surprised with GERD also. I am an EC survivor. My son and granddaughter also have GERD. Diet is very important. He cannot use the protonix so he is treating his GERD entirely by diet. Oh, keep yourself elevated at night. Purchase a wedge or get an adjustable bed. It is important to keep the hydrachloric acid from your stomach from coming up into your esophagus. When I keep on my GERD diet I do very well also. Best wishes to you.
by jkavzig on Thu Feb 23, 2012 01:31 AM
Thank you for the tips. Do you think I can control the reflux without the PPI through diet and elevating at night? I wasn't sure if that would be enough since I have a hiatal hernia too.
I appreciate your response.
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If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
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