Primary Unknown..Please help..

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Primary Unknown..Please help..

by healthydays on Sat Feb 18, 2012 12:17 PM

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Hello all

My grandfather(aged 72) has continuous pain in the abdomen and right side below ribs, doesnt feel like eating, sometimes has pain in the shoulder.

The CT Scan report- Numerous Tumors in both lobes of liver (likely metastates) and pancreas as normal and everthing else in the abdomen ct as normal.

the doctor recommended for CEA and CA19-9 tests- Test reults CEA- 6.88 ng/ml and CA19-9 - 51000 U/ml.

Then he had endoscopy of the esophagus and the stomach which came out as normal.

Next the doctor has asked for a Needle test of the liver(yet to conducted).

I request everyone to give their inputs as please tell if we are missing something or some tests. Thanks for your inputs.

RE: Primary Unknown..Please help..

by Katherine62 on Mon Feb 20, 2012 10:32 PM

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I can only suggest that you keep pestering the docs to continue looking for the cause of the pain.  Oftentimes they start with most likely (ailments they see most often) and move down the list until they start thinking beyond the standard abdominal pain.  I am sure they did blood labs and found nothing of concern.  

Start tracking everything he eats, when he eats, when he has bowel movements, activity, and when/if pain increases or decreases.  These can be invaluable to docs and they can often pinpoint the culprit.  Be meticulous.  I can't tell you how many times a doc has thanked me in the past for my notes - it really documents so much more than what the docs can see/feel during an exam.  Nothing is worse than having a persistent pain ease up just before an exam.  

Keep us posted....not everyone will reply but many many will read.  If your experiences can help one individual it is worth sharing.

Katherine

RE: Primary Unknown..Please help..

by Roselvr on Tue Feb 21, 2012 03:57 PM

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Best suggestion is to find a top cancer center associated with a university teaching hospital. Some times this is the only way to get answers.

If you want to say where he's located; I can look up top centers in his area

RE: Primary Unknown..Please help..

by healthydays on Mon Feb 27, 2012 05:25 PM

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He has been diagnosed with Neuroendocrine carcinoma with liver mets (Tests conducted CT Scan, Tumor markers, FNAC,PET(To be conducted to find the primary). There are multiple lesions in both the lobes of the liver. The Doctor has said that there are not many treatment options and that only chemo is viable, but chemo might not be of any benefit.He has given a 4-6 months time. 

Also he has high pain in his abdomen, shoulder and below the ribs right side.

I request everyone to please share whatever information they have on the treatment options. Thanks in advance.

RE: Primary Unknown..Please help..

by healthydays on Mon Feb 27, 2012 05:26 PM

Quote | Reply

On Feb 18, 2012 12:17 PM healthydays wrote:

Hello all

My grandfather(aged 72) has continuous pain in the abdomen and right side below ribs, doesnt feel like eating, sometimes has pain in the shoulder.

The CT Scan report- Numerous Tumors in both lobes of liver (likely metastates) and pancreas as normal and everthing else in the abdomen ct as normal.

the doctor recommended for CEA and CA19-9 tests- Test reults CEA- 6.88 ng/ml and CA19-9 - 51000 U/ml.

Then he had endoscopy of the esophagus and the stomach which came out as normal.

Next the doctor has asked for a Needle test of the liver(yet to conducted).

I request everyone to give their inputs as please tell if we are missing something or some tests. Thanks for your inputs.

My grandfather has been diagnosed with Neuroendocrine carcinoma with liver mets (Tests conducted CT Scan, Tumor markers, FNAC,PET(To be conducted to find the primary). There are multiple lesions in both the lobes of the liver. The Doctor has said that there are not many treatment options and that only chemo is viable, but chemo might not be of any benefit.He has given a 4-6 months time. 

I request everyone to please share whatever information they have on the treatment options. Thanks in advance.

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