Early study found it had high accuracy, but experts say it won't replace colonoscopy anytime soon
by audreyk53 on Mon Feb 27, 2012 12:00 AM
by Rebeccalub on Thu Mar 08, 2012 12:34 PM
Audrey, it is my understanding that if your blood counts are rising, that you are still having ET signs. Myelofibrosis is marked by decreasing counts. Why do you think you are morphing into Myelofibrosis?
by audreyk53 on Thu Mar 08, 2012 01:04 PM
by robynm on Fri Mar 09, 2012 02:09 AM
Hi Audrey I was diagnosed with ET back in 1994 I was put on Hydrea and tolerated it for 6 years, my platelets hovered around 700, had been 1 million, I went off all medication and tried some alternative not that doctors like you to do this.
I used a thing called Chelation EDTA Therapy my platelets lowered and I did not take any more medication I continued to go to my specialist and had 3 bmbs over the next 8 years.and remained stable. my last bmb (2007)showed and blood tests showed my white cell and hb lowering that is when I had gone into Myelofibrosis. I have continued on no meds and specialist still just monitors my blood work regularly. It remains low but I only have minor symptoms, anemia and have still managed to maintain a full time job. I also have another illness Lupus and Sjogrens and they give me more problems than my myelofibrosis.
by audreyk53 on Fri Mar 09, 2012 02:18 AM
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
Did you or your loved one seek a second opinion before starting cancer treatment?
No, but we got a second opinion after we started treatment
We care about your feedback. Let us know how we can improve your CancerCompass experience.