Metal Mouth

Hi All,

I'm almost 1 year post RAI and for the past 3 weeks I've had a terrible metal taste in my mouth that I can't get rid of.  I've had this off and on since RAI. I most notice it when I sweat and work out.  Just this past week has been the worst and  today it just seems over the top.  Normal or is something else causing this?

:)sb

Very normal for after RAI but I've never heard of it 1 year later.  If your endo is one who works with side effects, he may be able to cast a light on it for you. I don't know of anyone ever reporting it this long after RAI.

Sorry!

Thanks for your input!  I think I'll give them a call tomorrow:)

sb

Hello sbausman,

I had that same trouble some 7 months after my RAI and scared the very soul out of me. My endo explained it was normal and it was caused by the inflamation of the parotid gland, which is also the reason why it's worse when you work out... when exerting effort we salivate more. The metal taste came with jaw stiffness, visible inflamation and quite a bit of discomfort but it doesn't feel the same for everyone. I found it helped to massage my cheeks in front of the ear and the jaw line, pressing inward, towards my mouth... and eating lemons. However, I am not a doctor so I do think it best to check with your endo.

Hoping you'll feel better soon, Shy.

Thanks Shy for this good info.  I don't have the jaw stiffness just a really terrible taste in my mouth.

I'm right where you are. There's another post about this right now over here:

http://www.cancercompass.com/message-board/message/all,65401

The metallic taste started 5 weeks ago for me and was followed by intense pain when I ate. Hopefully you'll be spared that part!