One patient with glioblastoma still alive nine years later
by shockedbeliever on Thu Mar 08, 2012 05:01 AM
My mom was just diagnosed with stomach cancer in her lungs and lymph nodes, it is inoperable stage IV cancer. She is to start chemo next week for the rest of her life, she is thinking about experimental drugs to add to the chemo. Does any one have any advice or comments.
by MamaB on Thu Mar 08, 2012 05:17 AM
I am sorry to hear your Mom is having trouble. I would not add any 'experimental drugs' without first consulting her Oncologist.
Wishing her the best of luck and healing. God is awesome and he hears our cries.
Prayers and blessings,
by muigi84 on Thu Mar 08, 2012 06:15 AM
If you go through previous posts, you'll see that there are people stage 4 that have been doing well or are ok. Some achieve NED, some are more or less stable. Nenejeane who participates on the board, had mets to lymph and lungs and she has been NED for a while.
When you say experimental drug, are you talking about a clinical trial? If so, look up pubmed and find out as much as you can about that particular drug. It may be worth it because most phase 3 (almost ready for market) trials only accept people who have never done chemo before, so you'd be first in line for the newest drug. At the same time, you need to see if it's worth it considering the side effects, etc. Also, keep in mind that although some people do get on chemo continuously, many get breaks or stop treatment when there is no detectable disease. You should ask the dr how s/he feels about that. Also, make sure the dr checks to see if your mom has the HER2 mutation, to see if she's eligible for Herceptin, a monoclonal antibody.
On a personal note, my mom has been battling lymph node mets for more than 2 years. Its a bumpy road, but the support on this forum has been bery helpful. I wish your mom great success as she begins treatment.
by shockedbeliever on Thu Mar 08, 2012 06:34 AM
Thank you for your reply, God is Awesome and I have definately been crying. Her oncologist did offer experimental drugs, but by her words to help other patients. I am praying for her strength and praying for God to take it away. Thanks for your prayers and your reply, Shocked Believer
by polyanna on Thu Mar 08, 2012 04:26 PM
I'm so sorry to hear about your mum, I know how devasting this can be. My mum was also diagnosed July '11 with stage 4 (peritoneal mets). Initially, we also looked at experimental options but our oncologis advised to start with standard chemo first and try trials only if the first line of chemo didn't work.
What experimental drugs is your oncologist recommending? There are people with tons of insight on the forum and am will help you through these difficult decisions.
by shockedbeliever on Thu Mar 08, 2012 09:08 PM
Thank you for your support, I feel very uninformed because none of these terms mean anything to me. My mother lives 8 hours away, I am going Saturday for a week to visit. It is so hard getting all the info over the phone. It is very encouraging to hear people are doing ok. I just feel like someone knocked me over the head with a frying pan.
by shockedbeliever on Thu Mar 08, 2012 09:10 PM
I am not sure what experimental options they are talking about, I do know that if she chooses "no" to the experimental option she can not choose "yes" after she starts the regular chemo.
by ahayes44 on Wed Mar 14, 2012 07:07 AM
I highly recommend the Cancer Treatment Centers of America!!!!!
Cancer Treatment Centers of America (CTCA) is a leader in integrative cancer care.
They are state-of-the-art cancer hospitals houses the latest treatments and technologies. Your parent can receive all of your treatment under one roof by an experienced medical team. (for example - At each CTCA cancer hospital, you will have access to advanced technologies and treatments, including surgery, radiation therapy and chemotherapy. They help fight side effects with supportive therapies like pain management, nutrition therapy, naturopathic medicine, oncology rehabilitation, mind-body medicine, and spiritual support—all in one location.)
This is what is wonderful, they verify insurance benefits, gather your medical records, book your travel, and schedule your initial evaluation. If you don't have medical insurance, DO NOT let that deter you!!! It's worth a try, your parent's case may allow them free access. Please go to website and call them!!
Best of luck to you and continue to pray. More prayers that go up, blessings come down.
by muigi84 on Wed Mar 14, 2012 04:31 PM
What is your personal experience w/ ctca? You sound like a walking ad for ctca which may be valid based on your experience, but please share.
by Roselvr on Wed Mar 14, 2012 10:01 PM
On Mar 08, 2012 5:01 AM shockedbeliever wrote: My mom was just diagnosed with stomach cancer in her lungs and lymph nodes, it is inoperable stage IV cancer. She is to start chemo next week for the rest of her life, she is thinking about experimental drugs to add to the chemo. Does any one have any advice or comments.
On Mar 08, 2012 5:01 AM shockedbeliever wrote:
How old is your mom?
As far as Cancer Treatment Centers of America; some centers are better then others from what I hear. One good thing is they offer a lot in one place; but you can get the same things by going to a cancer center plus a natural place.
Here are a few posts about CTCA
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Destination: HOPE. Cancer care that is worth the trip.
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