Granulosa cell tumors - recurrent

View all Gynecologic Cancers Discussions Post A New Discussion

100 Posts | Page(s): Prev 1 2 3 4 5 ...9 10 Next

http://win.menopausaitaliana.it/articoli2010/hrt_after_cance Hi again, TB! Please see the above link and read the last paragraph before item#5. It says that HRT is contraindicated for granulosa cell tumors as the tumors often present with hyperestrogenism type symptoms! The granulosa cell tumors are, estrogen producing tumors....one reason why they watch us closely for breast cancer! Maybe you should consider sharing that article with your doctor. I know that my doctor did not want me on any hormone products. That might also account for your symptoms and blood levels?? What do you think?? Hugs, Starry Jones

Quote | Reply

StarryJones

Hi again Sophie, I was trying to look up some things for you and one article said that you should not be taking hormone replacement therapy. I need to look more specifically for your medication which is frequently used for birth control and endometriosis. I'm not sure about it's use for Granulosa cell. The medicationsI have heard of are Lupron and Avastin. I know when chemo has been used that BEP is the combination used but I have read postings from other women that had it and many that were told, like me, that it doesn't help. http://win.menopausaitaliana.it/articoli2010/hrt_after_cance Please keep your spirits up.....that is important!! Eat LOTS of fresh fruits and vegetables. Look into the idea of alkalizing your body....I take 1/2 teaspoon of baking soda in a cup of warm water first thing every morning. We are doing some juicing of vegetables to get the most possible nutrients.....there are lots of ideas out there worth following that might even help!! Sending hugs! Starry

Quote | Reply

teblevins

Starry Jones...

Thank you for this article. I am sending it to my Dr. and I will discuss with him about me not taking the HRT. How did you deal with hot flashes and all of the changes that your body goes through? I don't mean to give too much detail, what alternatives is there to help other issues vaginal?

Thanks again for this, I have been searching for this information.

TB in GA

Quote | Reply

StarryJones

Evening primrose oil capsules for the hot flashes and castor bean oil topically foe the other...at least that worked/works foe me. I don't seem to have too much of a problem with hot flashes anymore...just in the wee hours of the morning.

Quote | Reply

teblevins

StarryJones

So does all of the symptoms eventually go away? I have to keep my house around 64 degrees in order for me to get through the hot flashes. Night sweats and flushes that I cannot control. The flushes just happen without any warning and it is so embarrssing.

Have you ever thought that our cancer was formed by inherited gene? I believe it is. We just haven't research it enough.

Thanks for talking.

TB in GA

Quote | Reply

k655321

FOXL 2 gene mutation, in most cases (<a href="http://www.ncbi.nlm.nih.gov/pubmed/20198651">supporting case study</a>

I was diagnosed jan this year at 33 years old. One surgery removed my volleyball sized tumor and the other was staging and a complete hysterectomy.

If you have not found this yet, I'm sure you may have, please read this<a href=" https://docs.google.com/file/d/0B56SuugWxnwROTM0MWU1YWEtMzc1 for dummies</a>.

Kate

Quote | Reply

k655321

Sorry for the HTML in the post. It would not accept the post without it then it did not use it.

Silly internet.

Quote | Reply

teblevins

Kate

A volleyball sized tumor? Did you have any symptoms before finding out what was wrong?

Also, the FOXL2 gene... I don't understand any of that DNA language. Any of you out there scientist or a biologist?

Thanks

TB in GA

Quote | Reply

k655321

TB in GA,

I was 3 months postpartum so the things I should have noticed I did not. I was gaining weight, my stomach was distended, I felt full, I felt like I was still pregnant. There was some pain that came and went for a month, then a pain that would drop me to my knees (it would leave as quick as it came).

If you read the paper (the second link) you will have better understanding of the DNA part of GCT.

Quote | Reply

newbie2012

HI! I'm new here, hence the "newbie2012" handle. Just had a total hysterectomy (ovaries, cervix) for adenomyosis. "incidental" finding was a 1cm GCT in my rt ovary. Saw oncologist yesterday & he indicated no additional treatment is needed. I'm on HRT & age is 41. Am I "really" okay? Will this come back? Should I be taking HRT? I've got 2 daughters, is this hereditary? Sorry for all the questions, but these are things I asked my oncologist & he seemed to be of the opinion that this was found early & removal of all the tissues was the "cure". I'm a juicer, so time to kick that up a notch & I'm certainly game for baking soda & warm water in the morning. Trying to gather as much information as I can. Thankful to have found this forum so early on & gracious for any shared findings & knowledge.

Quote | Reply