Recurrence questions

6 Posts | Page(s): 1 

Recurrence questions

by EricG on Sun Mar 18, 2012 07:29 PM

Quote | Reply
I had surgery for stomach cancer 11 months ago. My CA19-9, which has been tested about once a month, has gone from 8 to 27 to 95 to 225 to 800 (normal is 37). Me CEA is up to 9 (normal is 3). Has anyone had numbers this high after surgery when it was not a recurrence? Has anyone had numbers like this when it was a recurrence? If so, how soon did it show in a scan? Anyone had a positive experience in beating a recurrence? I understand that it is rare, but would like to hear something encouraging. When I was diagnosed my CA19-9 was 5000 and CEA was 66, so I'm not at that level yet.

RE: Recurrence questions

by LabGuy on Mon Mar 19, 2012 08:58 PM

Quote | Reply

I beat a recurrence.  I was diagnosed in 2007 with stage IV adenocarcinoma of the GE junction with mets to four lymph nodes. 

In Jan 2011 a CT scan showed a mass in some abdominal fat near my spleen.  They surgically removed the mass and my spleen.  Now, a year later, no evidence of disease. 

Hip hip hurray, I dodged a second bullet, beat the odds and, in spite of long term problems caused by a year of chemo, radiation and a two surgeries, I'm grateful for everyday I'd never thought I'd see.

Tom

RE: Recurrence questions

by EricG on Tue Mar 20, 2012 01:48 AM

Quote | Reply

That is very encouraging Tom, thank you.  And that is great that you have no evidence of disease.  Was it hard to find a surgeon to do surgery the second time? They've implied to me that they wouldn't do it a second time around, but I'm wondering if different surgeons would say different things.

Congrats, and thanks.

RE: Recurrence questions

by muigi84 on Tue Mar 20, 2012 01:10 PM

Quote | Reply

Hi Eric,

I'm sorry but I don't have any experience with this. However, there's a blogger who's mom has stomach ca, was stage 4 I believe and recently had a reoccurance. The link is:http://kerryfranke.blogspot.com/

She just had surgery to remove a peritoneal met. Perhaps you can contact her as well? I hope you find this info helpful and my best wishes to you. Hang in there.

RE: Recurrence questions

by LabGuy on Tue Mar 20, 2012 10:16 PM

Quote | Reply

Eric,  I did need to convince a surgeon to perform the surgery.  I had tranferred from Stanford to Kaiser.  At Kaiser, my oncologist recommeded surgery, but the surgeon told me that it probably wouldn't do much good.  He said that I would probably have more recurrences, intimating that my case was hopeless.  It took a little pressure to convince him in the end.  I'm glad I did. 

I also asked my oncologist if he recommended chemo again after surgery.  He felt that the cancer was pretty resistant to chemo.  He told me I could shop a round and probably find an oncologist who would do it, but he didn't recommned it.  He tought the detrimental effects would be worse than the benefits.

Tom 

RE: Recurrence questions

by EricG on Sun Mar 25, 2012 05:23 PM

Quote | Reply
Thank you both - that is very helpful to know.
6 Posts | Page(s): 1 
Subscribe to this message board discussion

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.