Why Aren't There More Places Performing Nanoknife?

I was diagnosed April of last year. It took the doctors six months to find out what was wrong with me. So, I am guessing about 1 1/2 years now or longer. I started Chemo in May of last year. My tumor remained the same threw Chemo and Radiation. However, I have been feeling good a lot threw all of that, so I was off Chemo more then on. I do pray a lot! This cancer has brought me closer to God and I feel blessed by it. I put my trust into God and his will be done. My ca19-9 was over 400 before starting Chemo and went down to 85 while on Chemo. Now it's up again, so as soon as I get the ok to start Chemo again, I will. I will put your mom on my prayer list. I don't need her name, God knows who I mean when praying. Please keep in touch and let me know how your mom is doing. Take care and remember our Lord is by her side helping her threw this.

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My husband had a whipple procedure with the nanoknife in Louisville last December.  He was cancer-free at his check-up in March.  His Oncologist thinks it is a miracle.  I hope it has opened his eyes to suggest new things like the nanoknife.   Dr. Martin and his staff are absolutely the best!!

Hi, Pat

Thank you for sharing your story.  By any chance did your husband already have liver metastases or was the tumor only stuck on the arteries?  Also, do you know if they will still do the Nanoknife if the bypass has already been done? My dad was supposed to have the Whipple but they found some pinhead sized metastases on the liver and elected to do palliative bypass instead.  We haven't done any chemo yet.  Thank you for your time and I will keep you and your husband in my prayers.

Keinah,

My husband had no metastases at all. Check out Dr. Martin as I don't think Dr. Watkins will do Nano with metastases and Dr. Martin will. My husband had one bypass previously at the stomach during failed Whipple and the second one at the doudenum with the Nano.. Both of these doctors are surgeons and have phone numbers on Google to get in touch with them. I don"t know about Interventional Radiologist. They're not surgeons so a previous bypass may be a plus. I don't know what knid of bypass your dad had.  I've seen lots of success with Folfurinox and liver  metastases prior to Whipple. Most of that info is here and there is a lot more information on the John Hopkins forum about it. I think that appears to be the new "standard". and it appears to be doing a good job. There are other chemo options too.

The Nano is something entirely different and doesn't involve all that the Whipple does in terms of surgery. You need hard copies of any CT Scans but a phone call will get you the answers quicker. That's what we did and found out who could do what. I know there are a lot of Radiologist country wide that can do the Nano or I.R.E. or ablation as it is also known as, but only a few surgeons. I would start with Dr. Martin and a Interventional Radiologist to see if either one will deal with the metastases. Any hospital that does Nano is listed under Nanoknife places on Google. Also go to John Hopkins site and look for forums under pancreatic cancer, or on Google for "Best pancreatic cancer forums"  as there is loads of info on all types of chemo there.  You have many options and the metastases can be addressed.

Good luck

Pat

         

Hi Pat,

My name is Sheila I was diognosed Sept.2011 with stage IV pancreatic cancer, first symton was stomach ach, my GP sent me for altrasound and then CT scan, I then saw a surgeon at that time I had developed jaundice, and he also saw something on my Liver, I was sent then to have a ERCP which freed the blockage and a stint was inserted, I felt good after that no aches or pains, next was a biopsy on my liver which showed I had a couple of leisions there so that was the end of having the wittle surgery, next option was folforinox which I have been on since November 2011 just completed 6 months, my Oncology Docter is keeping me on the folforinox for a couple of more cycles and then another ct scan - my previous scan was done the end of March which showed  the tumor had stabilized and swelling around the pancriatic area had gone. I would be very interested in having the nanoknife but it sounds as if it is only in the U.S. I live in Canada, next visit I will ask my Dr. if it could be a possibility for me. Good Luck to you and your Mom, you are in my prayers.  Sheila

Shelia

The Folfirinox seems to shrink things for a lot of people. The Nano is used at this time for tumors that are "inoperable" or for those who cannot have a Whipple. I could not find a location in Canada for it but Folfirinox seems to be helping you. Depending on where in Canada you live the Nano is done throughout the U.S. just look up Nanoknife locations. Good Luck- one step at a time!

Pat 

Dear Pat,

Thank you so much for getting back to me.  I emailed Dr. Martin and he got back to me right away.  He does want us to start with the Folfirinox first and then check the status of the metastases.  I pray that your husband is doing well and that he continues to do so.  Hearing about the nanoknife has really given our family some extra hope (and don't we all need some of that!)  Thank you again and I keep you and your family in my prayers.