One patient with glioblastoma still alive nine years later
by Hophop4 on Tue Mar 20, 2012 06:32 PM
Just got back from seeing my doctor at MDA and I am in remission. This is three years since SCT. Currently I am on Rev 25 mg with once a week Dex 20 mg and I will be staying on this treatment since it is working. Bone Survey and Bone Density came back normal and nothing new showing up. My bloods look ok too. We didn't get the urine results back yet maybe in a couple days.
by Liz99 on Tue Mar 20, 2012 06:50 PM
by MamaB on Tue Mar 20, 2012 06:52 PM
I am so glad you got the 'up lifting' news and the 'R' word was used, (remission)!
I am RCC, I have been clear since surgery, for just over two years; go back for scans and labs in May. I am very eager to hear the 'R' word! :)
Stay strong, positive, have hope and faith and enjoy each new day, like never before!
Prayers and blessings,
by Fritz01 on Tue Mar 20, 2012 07:54 PM
That's great news Hop. Hopefully many, many more years of remission.
by Hophop4 on Tue Mar 20, 2012 09:45 PM
Thanks all, and I wish the same for everyone else.
If you all remember a year ago the Myeloma started to come back and that is when they increased the Rev 5 mg (that I was on for maintenance) to 25 mg. So the low dose wasn't doing it's job. It's amazing how these drugs work differently on different people. I go back to MDA in 3 months.
by nyyfan on Wed Mar 21, 2012 11:38 AM
great news Hop! happy for you....keep up the good work!!
by Windymoose50 on Thu Mar 22, 2012 10:47 PM
Hop!! Wooohoo! Yea you!! Gayle
by TJW60 on Fri Mar 23, 2012 01:13 AM
by gibby56 on Fri Mar 23, 2012 04:22 AM
Very happy for you Hop...
Cargiver of beloved husband, Terry
by lindabochnovich on Fri Mar 23, 2012 12:33 PM
It's wonderful to hear your great news. It is always so encouraging to the rest of us living with this disease to hear that one of us is doing well. Thanks for sharing your fantastic results.
Linda in PA
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