One patient with glioblastoma still alive nine years later
by bpp30m on Fri Mar 23, 2012 06:02 AM
my son Matthew will go under the knife for what the doc called a third ventricularostomy to drain excess fluid from his brain. He says it has a 50 50 chance of clogging back up. then they will have to go back in and put a shunt in. He says if we put a shunt in now, we risk chance of infection and we also have a gateway for tumor cells to spread easier. The chances of that are slim, but they are there. Doc said that astrocytes usually wont grow outside the brain but they can. I pray it works. This was pretty much my decision and i hope it was the right one. The one good thing about this mess was that there is no tumor progression, this was just one of those things that happens, probably had something to do with radiation.
by jon4156 on Fri Mar 23, 2012 02:22 PM
Praying for success.
by number9 on Fri Mar 23, 2012 04:32 PM
Thoughts & many many many prayers in my heart's "miles for Matthew."
by sbpatrick2002 on Sat Mar 24, 2012 04:53 PM
I had my shunt placed before knowing the type of tumors they were dealing with. My doctor expressed the same concerns in that tumor cells could more easily spread. However, I was suffering with such severe hydracephalus that he was more concerned with the possibility of siezures that could be fatal. So, we decided to go ahead with the shunt. One of the big things to consider is the age of your son. If he still has a lot of growing to do, they will have to go in periodically to extend the tube to ensure it's working properly.
All that said, and even though my surgery was very disruptive to the core muscles in my stomach and chest, the end result was a much easier time in life. Before they put the shunt in, I was suffering from severe headaches sometimes 4 or 5 times a day. Once the shunt was in place, the headaches stopped. It was an instant change. If you have any other questions, let me know. If I can answer them, I'd be more than happy to!
by forhim1122 on Sat Mar 24, 2012 10:20 PM
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