Small trial suggests the scans might help, but experts aren't so sure
by cpnmorgan on Sun Mar 25, 2012 03:04 PM
My husband, 31 months post GBM dx, still has neurological issues and lately he is believing drops in barometric pressure is to blame for recent, stronger symptoms. He gets headaches, feels dizzy, his right arm swells and goes numb, and his right leg gets weaker. He already has right sided weakness due to location of tumor, its complete resection and course of radiation and chemo. He is currently not on any chemo. He has also suffered several bigger focal seizures in the last few months, all about the time of inclement weather.
Has anyone heard of barometric pressure causing such symptoms?
by jon4156 on Sun Mar 25, 2012 07:41 PM
When is the last time he had an MRI? The symptoms you are describing would warrant an MRI in an otherwise healthy person and unless his last MRI has been within the past 8 weeks I would contact his NO immediately.
Issues from barometric pressure changes typically affect people with metal pins/plates in bone, arthritis or other bone maladies, not soft tissue such is present in the brain.
by cpnmorgan on Mon Mar 26, 2012 12:51 AM
He has not had an MRI in 6 weeks. He will have one next month and then we go to Duke U for his appointment. We go there every 4 months.
I will call Duke tomorrow and hear their thoughts. I can't convince my husband to contact his doctor about this. He has it set in his mind currently that these changes in barometric pressures are cause for his neurological issues. Apparently someone told him this and so that is enough reason for him.
by whonew on Mon Mar 26, 2012 07:06 AM
My sister was in complete denial throughout her illness. When she would be unsteady on her feet it was because she stood up too fast. When her talking wasn't right it was because she didn't get enough sleep. This went on the entire time, one excuse after another. I understand denial and I now believe that it is the only way some people can get through horrible times. On the other hand as a caregiver I found that there were times I wanted to call the doctor and she would stop me with her excuses. Sometimes I would call the doctor without her knowing. I know it's difficult and sometimes we have to walk on eggshells but we all know deep inside what we need to do, we know what we see and we know if it's not right
by wvleroyhayes on Mon Mar 26, 2012 10:40 AM
This has affected me since i was a teenager, if a large storm is coming , low pressure system type, my head feels like it is going to burst. It causes me migrains, and associated with the migrain is prisms in my eyes. As soon as it starts raining i feel better. Not sure why he would get weakness or his arm swells, it could be just restricted blood vessels.
by kat54 on Mon Mar 26, 2012 01:29 PM
I am a 19 year GBM survivor and yes changes in weather have always bothered me. mostly headaches get worse. the pressure in the spinal fluid that fills the cavity left from surgery seems to change. I keep the surgery site warm at night. I notice when it is windy I am more off balanced and confused.
by tmfaubus on Mon Mar 26, 2012 10:08 PM
Yes I experience it also. High barometric pressure makes my head hurt. I have an inoperable diffuse intrinsic pontine glioma dx'ed 9/01/10.
by cpnmorgan on Mon Mar 26, 2012 10:34 PM
After speaking with a nurse clinician today from Duke University, it seems there is no clear evidence to support a drop in barometric pressure, or low pressure symptoms from inclement weather to cause such symptoms my husband has experienced. She stated, yes, individuals with athritis issues certainly experience more pain and discomfort during these weather patterns, but for a GBM patient, not so much.
Of course this raised more questions and concerns during my conversation with her. Clearly there are some new health symptoms popping up lately with my husband. His MRI in February showed stable. Next month's MRI will tell us if there is something going on to cause these issues.
Yes, my husband is in denial at times and has answers to every symptom he has, when I am uneasy otherwise.
Every day is a new day. Every day brings a new twist and turn. One can only keep riding this roller coaster and hope to hold on!
by siblingof on Tue Mar 27, 2012 01:24 AM
by crayfish on Tue Mar 27, 2012 02:14 AM
Interesting subject. I was a caregiver who couldn't help but read this and want to reply - when a storm is coming I get real nervous - almost panicky - weird feeling. And like the other poster said, once it starts raining it goes away. I have been feeling this since about 2004 so have had enough experience with it to say this is what is going on.
Hope this is true of your hubby and that all will be OK.
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