One patient with glioblastoma still alive nine years later
by cindy1000 on Thu Apr 05, 2012 01:01 PM
thank you, I have had 5fu and oxalplatin. Im scared .This is my first time on a web site.
by Tgoodbody on Fri Apr 06, 2012 03:46 AM
by busiwork on Mon Apr 23, 2012 09:25 AM
So sorry to hear about your daughter - it is such a sad but supprisingly normal tale I am discovering, through reading peoples discovery journeys, with this form of cancer.
Your story is so real to me - it made me cry as soon as I read it.
My lovely Mum was diagnosed with exactly the same as your daughter - Stage 4 - started from a large tumour in the bowl/colon and then has gone into multiple mets in her liver and lung.
Mum (aged 66) had the same symptoms as your daughter - pain in her side and back - but thought she had pulled a muscle gardening or maybe indigestion/gall-bladder - we didnt really know. But nothing can prepare you for the shock of that day when the diagnosis comes.....it knocks the stuffing out of you - and replaces it with sadness.
Our lives were turned up-side down, like yours were, on the 28th of November 2011 - Mum has been told it is terminal and inoperable and has had the same chat as your daughter had, about palliative chemo and quality of remaining life.
Mum has just completed a set of 4 chemo treatments in blocks of 2 weeks over the last 3 months and they have now given her a little break of 5-6 weeks. They called it her 'window of opportunity' so that she could do something she wanted before .........who knows what comes next.
Mum chose to go on a little 5 day break with my Dad to The Lakes in the UK where she always wanted to go.
"One last holiday" she said to me - those words just break my heart.
I cant fully imagine the pain you have gone through in losing her, the living grief is bad enough - but unfortunately I know I will also have to face it.
I hope that you can find more peace in time - the one thing I think life has taught me more than anything is: Life isnt fair- quite frankly it sometimes stinks.
God bless you x
by Tgoodbody on Tue Apr 24, 2012 01:57 AM
I am really sorry to hear about your Mom. And I am sorry that you have to go down this path with her. It is hell on earth.
I am happy to hear that your Mom has a break between rounds to enjoy time with your Dad. Every moment is a blessing. My daughter was gifted a trip to Walt Disney World in Florida by the Dream Foundation. She was a huge disney fan. It was such an amazing trip. Even though I know she was in pain and feeling sick she out paced us all. We were thinking of getting her a wheelchair but she wouldn't have anything to do with it. Amazing. It was truly God's strength that carried her through those few days. And what wonderful memories we have. She passed away just over two months later.
I will keep you and your family in my prayers. I wish I had some magical words to say but I am afraid I do not.
Please keep in touch. God bless you all.
by ccataldo25 on Fri May 18, 2012 07:57 PM
Hi, I found this Blog and felt like I was going to share. I am 35 and was diagnosed with colon cancer in March of this year. I had been ill for awhile and finally went to the Dr. and found out I had a large tumor. I could tell the Dr's were concerned and I was scared. The whole point of this is that I had my surgery and it was stage II and ironically my lymph nodes were clean all my scans were clean so I am better. By some grace of god I was was given a warning. If something seems out of the ordinary with your body it probably is. I had my treatment at MD Anderson Cancer Center and they were amazing. Now I have to just be screened carefully so I considermyself lucky.Lesson learned this is serious and it is affecting more people who are under the screening age so it is important to understand your body and when it is telling you something is wrong.
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Destination: HOPE. Cancer care that is worth the trip.
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