One patient with glioblastoma still alive nine years later
by Vivacious on Thu Apr 05, 2012 01:27 PM
Is anyone out ther on Xeloda for stage 1V. The surgeon said he probably got it all, but there were 4 out of 14 biopsies with cancer cells. Still having problems with colostomy leaking and now starting Xeloda this Sunday for my first two weeks of chemo. Has this helped anyone else out there??? I am 78 years old and this is the very first time I have ever been sick or in the Hospital my whole life, now this! Please let me know what you have experienced on this medication so I will know what to expect. Thanks Yvonne
by Frankiebones on Sat Apr 07, 2012 11:52 PM
I am a stage 4 colon cancer patient and have been taking Xeloda for years...I am currently taking 2,000mg a day for 2 weeks on and off 1 week...I have tolerated 5,000mg a day with the same schedule. I would say Xeloda has had positive a effect on me. I also have chemo every 3 weeks. Cancer cells have a protective coating they few things can penetrate...Xeloda is one that does penetrate through the protective coating. I am also a believer of drinking lemonade made from Real lemon juice and/or fresh lemons and Splenda....no sugar in my diet...cancer cells love sugar but they hate lemons and unlike chemo drugs that kill both bad cells and good cells, lemons kill only the cancer cells and leave the good cell alone...best of luck...I am 71 and was diagnosed with stage 4 in Dec. 2008...I feel good...no pain...and I also listen to Bible study every day on the Internet...I pray that God blesses...best wishes...
by eternalife on Sun Apr 08, 2012 02:07 AM
My husband is on Xeloda for esophageal cancer, he is a stage iv, his fingertips have darkened and his palms and soles are scaly and tender. We is in his 3rd round of chemo taking herceptin too. We have a scan at the end of this month and will find out if the chemo has helped.
Will post the results of his chemo when we know more.
Good luck with Xeloda, it seems to be well touted by the oncologists.
by eternalife on Sun Apr 08, 2012 02:10 AM
Just posted and noticed your comment about Xeloda being able to penetrate the cancer cell, where did you find that out and
about lemons, is that really true... my husband has been drinking lemonade, so I hope it will help for our next scan.
Encouraging to hear your positive results.
by Frankiebones on Sun Apr 08, 2012 03:51 AM
The British navy at one time were loosing lives to scurvy until a medical doctor discovered a cure...lemons and limes, which cured the disease...that's why they were called limies because they started carrying lemons and limes on their ships. Cancer like scurvy is a metabolical disease (it stems from within the body)...online doctors say that lemons are far better than any chemo drug...Oncologists cannot comment on it...my CEA was around 900 and is now 675 and fluctuates within a range of 500 to 700 points...hope this helps...this Dec will have been 4 years since I was told I had stage 4 colon cancer...
Best of luck!
by Vivacious on Mon Apr 09, 2012 12:08 PM
Thanks for all the help and suggestions. I took the first dose yesterday, so I am on my way! Will try the lemon thing, but can you use the frozen or does it have to be fresh? Thanks again and hope we all get relief from this terrible illness that we have been given. If you have any other suggestions please post. Thanks again Y
by Vivacious on Tue Apr 10, 2012 03:00 PM
Why did you have to take this medication for years? Dr. said 6 months to me, but after that how do they know you need to keep taking this medication? So far no side effects for me, but this medication is so very expensive, how were you able to pay for it for that duration??? Yvonne
by Frankiebones on Tue Apr 10, 2012 03:01 PM
Lemons are best taken fresh, or, you can use Real lemon juice as well. If you google 'sugar and cancer' and 'lemons and cancer' you can review many articles on these subjects.
A strong will is very important and a strong belief that you will beat this is the most important! Stay active and keep your immune system strong!
Best of luck...I hope God blesses you!
by Vivacious on Thu Jun 07, 2012 08:48 PM
On Apr 05, 2012 1:27 PM Vivacious wrote: Is anyone out ther on Xeloda for stage 1V. The surgeon said he probably got it all, but there were 4 out of 14 biopsies with cancer cells. Still having problems with colostomy leaking and now starting Xeloda this Sunday for my first two weeks of chemo. Has this helped anyone else out there??? I am 78 years old and this is the very first time I have ever been sick or in the Hospital my whole life, now this! Please let me know what you have experienced on this medication so I will know what to expect. Thanks Yvonne
On Apr 05, 2012 1:27 PM Vivacious wrote:
Ok, I am on my 4th round of Xeloda, I have lost most of my hair, toe and finernails break off, and I am so tired all the time? I don't go back to Dr until end of June and will review my blood tests. How long before they will do a CT Scan to see if anything has spread to other areas? Still having severe problems with the colonoscopy and such but I still have an apitite but can't go anwhere because of the sudden changes in the colostomy leakage and such. I am up to 2500 MG a day with the two week on one week off. How are you all doing on this medication?? Please advise. Thanks Yvonne
by kathynesh on Sun Mar 01, 2015 03:33 PM
please please do not use splenda!!!!!! as it cuses cancer use stevia please research stevia is an herb and very good for you.
splenda causes cancer do no use.
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