On Apr 08, 2012 11:50 PM Razorbackmom wrote:
Thank you all that have written me with your support. We went to the Oncologist on Friday and found that the HL is stage II A/B - he said that her symptoms are not fully one way or the other. He performed a bone marrow aspiration and we will find out the results of that on Tuesday. He wants to put her on a treatment plan of 6 treatments of Chemo every two weeks and then radiation. For her, she wants to try to finish up school a little early so that she can start on the first of May with her treatments. This way she has a really high chance of getting back to normal in the fall. This is what she wants. She understands that her health comes first, but also is willing to fight this with all that she has. The doctor recommended that we see a reproductive doctor for possibility of freezing some of her eggs because there are studies that chemo/radiation can cause infertility. We were able to get into this doctor on Friday as well - this seemed like a real joke to me. Sorry if I offend anyone. It was just weird and for 13K + yearly storage fees we can freeze some of her eggs. It almost felt like we were at a car dealership. It was 4:45 on Good Friday and this doctor was more than willing to do a blood test and perform a sonogram - this is what did it in for us. We told him that we would get back with him. As we walked out laughing - more from the shock of what we had went through and the fact that we were basically had more information that we needed in one day. We were exhausted, but were still able to laugh at the fact that this was an odd doctor’s appt.
Today my daughter left to go back to college. I hated to see her go, but I know that she wanted to get back to a couple of days of normal. Next Friday we have an appt. with a Radiation Therapist and she has an EKG and pulmonary test. We are also trying to get into a second opinion doctor on the following Monday before she goes back to school.
Tgoodbody - Praying for you and your daughter, hope her new treatment plan is helping her.
Abbala - Thank you for your comments, we are taking one day at a time and are putting her health as the number one priority. She understands that, but she also loves her friends and college very much, so she is going to do whatever she has to do to fight this and get back to normal.
Rosies_mom - Thank you for your prayers. She and I have a support group of family, friends and new friends helping her get through this. For her treatment this summer she has many friends coming to be with her and help her get through this.
GrammaKitty10 - My heart, thoughts and prayers go out to you. You are a strong person, just like my daughter. Right now it is a struggle for her because she doesn’t understand why God would do this to her, nor do I. Why wasn’t I the one that? I told her that God works in mysterious ways. She wants to be a pediatric nurse and her dream is to work at St. Jude’s. Maybe this is a preparation to the dream. Not sure, but it is scary.
I am still scared, but have found that I have a lot of support. It won't be easy, but we will get through this.