My daughter has a demoid on her back and has had two surgeries the first 4 years ago, We were told at that time it was a benign tumor, had laproscopic surgery, but when it grew back, I took her 2 years ago to Sloan Kettering where they defined it as a non-metatstic tumor. We opted to have radical surgery only, and it has grown back, Now we are facing another surgery followed by radiation. I see your note is from 2 1/2 years ago and hope you are now in remission.
My prayers are with you.