One patient with glioblastoma still alive nine years later
by sholliman on Tue Apr 10, 2012 10:33 PM
Can anyone let me know if it would be beneficial to keep my power port, or remove it. I have pancreatic cancer diagnosed 5/31/2011, had the whipple 6/15/2011, chemo ended 2/13/2012. My scan on 2/28/2012 shows no sign of cancer. I am starting a new job and have removal surgery scheduled 4/16/12. I am really confused on whether I should get this removed, or keep it. The decision to remove is purely financial because insurance will pay 100%. My oncologist is not making a recommendation either way. However I am concerned about removing it because of the high chance of recurrence of this cancer. I have no problems with this port. Any words of wisdom or experience? Thank you and god bless.
by DavefromCT on Wed Apr 11, 2012 01:37 AM
I had my Whipple 12/10 and finished chemo 9/11. Dr. started talking about removing the port my last visit in Feb., but I'm assuming at this point she's going to wait until after my next scan scheduled for August. I'm like you ... with the chance of reocurrence so high within two years, I'm in no rush since it really doesn't create any issues other than having to get it flushed every 6-8 weeks.
by sholliman on Wed Apr 11, 2012 02:11 AM
Thank you DavefromCT. At this point I am leaning not to have it removed, but still have 3 days to decide. It's hard for me to decide because of the uncertainty of the supreme court's decision on health reform and having to change insurance with my new job.
by RocCandy on Wed Apr 11, 2012 01:43 PM
My husband dx May '09 - rad/chemo then whipple Aug '09 - chemo post surgery. Now back on chemo. His port has never caused him problems so he opted to leave it in. Hope this helps!
by swdesertlover on Wed Apr 11, 2012 02:35 PM
My husband was also diagnosed in 2009. He was also given the option to have it removed when he finished his chemo, but decided to leave it in. We're glad he did because he's now back on chemo. Having it in never caused him any problems. He did have to go have it flushed about every six weeks, but that only took a few minutes.
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