Uncatorgorized Renal Cell

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Uncatorgorized Renal Cell

by CarrieBuckle on Wed Apr 18, 2012 02:17 AM

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My husband and I took others advice and last week went to see Dr. Tannir at MD Anderson  in the hunt for some hope.  Prevously he was diagnosed with Medullary but with him not having the sickle cell trait it has been determined he has uncatorgorized renal cell.  The plus of the visit was to hear that there are some treatment options.  The downsize is the lack of hope for remission. We are thankful for our visit to MD Anderson and would recommend others when hope seems hard to find to make the voyage. We are now home to work with my husband's local oncologist who will consult with Dr. Tannir on treatment.  We are now getting close to our daughters 1st birthday (June 2) which last sept. was told would be "un probable".  Continuing to fight but also seeing the old symptoms return and are very scared.   Looking for ways to talk to my husband about his wishes, and gifts of letters I would like for him to do for our two little ones without showing him I'm giving up.  Any suggestions?

RE: Uncatorgorized Renal Cell

by Reellucky on Thu May 24, 2012 10:36 PM

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If your husband is not open to discussing planning for the worst while hoping for the best, you have a real challenge ahead of you. Check google and you tube for stories of others who have left videos or letters for their young children to view while growing up should they pass away. I just saw one on tv recently of a father with 2 young daughters and he made videos for his daughters of everything from dating choices to driver's education. I am a 58 yr old male with stage IV RCC and it brought tears to my eyes to watch. My boys are 30 and 24 but if they were younger, I thought it was an incredible gift to leave for his kids. Good luck. Charlie
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