HELP My father is suffering & I need Answers!

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HELP My father is suffering & I need Answers!

by Susylicious on Thu Apr 26, 2012 12:48 AM

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Hello,

My name is Susy! My father was diagnosed with Bladder Cancer in 2010. I have been an active a part of all of this every step of the way due to the language barrier. - My father speaks portuguese and understands some english, but not enough for these kinds of things.

HERE IS A SUMMARY OF THE SITUATION:

In the Summer of 2011 he had his Bladder & Prostate removed. The cancer is gone and he has an external bag. One week after his first surgery he had high fever and chills. We went to the hospital and they said he had an infection. They inserted a tube through his penis to drain the fluid. After a few days he went home. The same thing happened once again a month later, it got to the point where for a year he was in and out of the hospital with this infection. Finally my father and my family spoke to the doctor about correcting this. The doctor let us know that ther was a leak coming from a hole in his intestines. The options my father was given was to continue to wait it out as the hole "should" close on its own or have surgery to mend it. My father at this point was sick of being in and out of the hospital and wanted it corrected. On March 12, 2012 my father went into his second surgery to repair this hole. When the surgeon came out of the operation he let us know it went very well and that they noticed some of his intestines were very thin so they removed 4 ft of his intestines instead of 2 to avoid future problems. He came out of the surgery very weak (as to be expected) and was sent home after a week. Once again, 2 days after being sent home he was feeling extremely ill and with a fever and chills. We went back to the hospital and he continues to have an infection. They are saying he has an abcess in his stomach. They have put in a drain in his stomach, penis and in the induit (where the external bag is) He has been in the hospital for serveral weeks now. In pain, loosing weight, extremely depressed and we are getting no answers from this.

Recently we were notified that there "might" be a hole where the induit is. That apparently they saw a hole during this second surgery and thought they mended it. - The doctor did NOT mention this other hole to us at all when he came out of surgery to let us know how everything went.

This is a cry for help! I dont know what else to do! I am watching my father slip away and loose hope in the hospital, the doctors and most importantly himself.

If ANYONE can please give me any advice i would truly, deeply appreciate it!

Tomorrow i will be meeting with the doctor to discuss what is going on and to hopefully finally get some answers on all of this.  

Thank you so very much!

RE: HELP My father is suffering & I need Answers!

by wvleroyhayes on Thu Apr 26, 2012 10:12 AM

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Wow, thats just rough. I have been thru that surgery. If there was any kind of leak in the intestines infection would surely set in. The only thing i could see they could do is remove some more intestine if possible to get to a healthy part where he wouldn't have this problem. If that is the problem. I believe i would be on the Doctors butt over this for some kind of answer. 

RE: HELP My father is suffering & I need Answers!

by wvleroyhayes on Thu Apr 26, 2012 10:17 AM

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Also you might want to post this on the Bladder Cancer Advocasy sight where you would get more answers. Not many bladder cancer posts on this site. The Bladder Cancer Advocasy Group is on Inspire https://www.inspire.com/ They also have an Ostomy support group this is very helpful. Dave

RE: HELP My father is suffering & I need Answers!

by wvleroyhayes on Thu Apr 26, 2012 10:18 AM

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https://www.inspire.com/      here is the sight, the previos post got words jumbled with the address.

RE: HELP My father is suffering & I need Answers!

by Susylicious on Fri Jul 13, 2012 02:04 AM

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Thank you kindly! Things have gotten alot worse. Im affraid.

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