ccnu didn't work Radiation next

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ccnu didn't work Radiation next

by EllenFisch on Sat Apr 28, 2012 03:55 PM

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It's with a heavy heart that I write this. I will start radiation next wk for 2-3 and then have a scan a mth after that. I guess I thought with the missing DNA in my tumor that I'd be more responsive to treatment. Doubting myself about not taking the high dose Temodar only once. Although my Doc did say a few mths later that there's no actual proof that the Temodar actually works beyond the 6 wks radiation and low dose chemo. I'm thinking about all my special friends om cancer compass. My Mom said to me if I could take this from you and give it to myself I would. I cried with my sister late last night. Ellen

RE: ccnu didn't work Radiation next

by forhim1122 on Sat Apr 28, 2012 04:19 PM

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Oh, Ellen. I'm so very sorry! I'm crying right along with you and your sister. Don't you dare wonder about Temodar or any other path. Let's get through this radiation and zap the bugger. Vision the laser focus killing those damn cancer cells. We will eradicate this monster! Keep up the faith and best of luck next week. I will be thinking of you. Patti

RE: ccnu didn't work Radiation next

by karynk on Sat Apr 28, 2012 05:44 PM

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Hang in there Ellen!

Radiation has been the answer for Tom ALWAYS!  If you are anything like him, then you will want to avoid any red meat during radiation - he can't eat it, it tastes spoiled.  When is your appointment with the Radiation Oncologist?  I know that some people have used celebrex while going through radiation - you might want to search that. 

I'm here if you need me!!!

-Karyn

RE: ccnu didn't work Radiation next

by tromda on Sat Apr 28, 2012 06:47 PM

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Hi Ellen - Don't doubt yourself, we heard the same thing about that there is no evidence about temodar having any effect after 6 months.

Sending hugs your way.

RE: ccnu didn't work Radiation next

by pearsonjosh19 on Sat Apr 28, 2012 06:47 PM

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On Apr 28, 2012 3:55 PM EllenFisch wrote:

It's with a heavy heart that I write this. I will start radiation next wk for 2-3 and then have a scan a mth after that. I guess I thought with the missing DNA in my tumor that I'd be more responsive to treatment. Doubting myself about not taking the high dose Temodar only once. Although my Doc did say a few mths later that there's no actual proof that the Temodar actually works beyond the 6 wks radiation and low dose chemo. I'm thinking about all my special friends om cancer compass. My Mom said to me if I could take this from you and give it to myself I would. I cried with my sister late last night. Ellen

ellen sorry it didnt work for you.  have you looked into gamma knife of stereo radiation treatment?  I know the tumor has to be under 4cm diameter but it is wortj looking at

RE: ccnu didn't work Radiation next

by Sheila5 on Sat Apr 28, 2012 07:43 PM

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Hi Ellen,

I know it is scarey, but you are such a warrior.  You can handle it and I have faith in you!

Take it easy and think positive!

Love,

Sheila

RE: ccnu didn't work Radiation next

by siblingof on Sat Apr 28, 2012 08:15 PM

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Ellen, wishing you strength. You're a fighter...

RE: ccnu didn't work Radiation next

by sluss910 on Sun Apr 29, 2012 02:20 AM

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Praying for you Ellen!

RE: ccnu didn't work Radiation next

by jon4156 on Tue May 01, 2012 03:28 AM

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Ellen, I continue to pray for your healing.

RE: ccnu didn't work Radiation next

by Leeland on Wed May 02, 2012 03:22 AM

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Never doubt yourself about the Temodar, you know yourself better then any doctor does, you made the best decision for yourself.  You'll do great with the radiation, this is a crazy ride we all are on, but it makes us that much stronger!!!!!! 

WERE SURVIVORS!!!!!!!!!!!!!!

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