ccnu didn't work Radiation next

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RE: ccnu didn't work Radiation next

by nvarhuner on Wed May 02, 2012 06:51 AM

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dear ... my son nvar 11 years old ...will had 2en phase of raditian on 7-may ... after that doctors desided about radiation treatment for him ... am wory ... god bless you ..

RE: ccnu didn't work Radiation next

by Cristiana on Thu May 03, 2012 03:18 AM

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Dear Ellen RADIATION IS A MUST !!!! It will save you ! Please if you need second opinion do call Dr Jay Loeffler at Mass General in Boston.

I believe he is top in the US and they have Protom Beam !

Go for it it can be done and YOU will be the one !!!

Send news

Warm hugs Cris

RE: ccnu didn't work Radiation next

by kat54 on Thu May 03, 2012 03:49 AM

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Ellen I am so sorry .  Inly did radiation. So far no chemo.  don't second guess your decisions.  we do the best we can with the information we have.  Prayers for a successful treatment and peace of mind.  kathleen

RE: ccnu didn't work Radiation next

by kat54 on Thu May 03, 2012 10:25 PM

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chris & ellen, Dr. Jay Loeffler did my radiosurgery in 1993.  kathleen

RE: ccnu didn't work Radiation next

by jon4156 on Fri May 04, 2012 04:33 AM

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Ellen, I wonder if you might ask about continuous dose Temodar.  It's low dosage (50mg/m2) but taken daily rather than the typical high-dose 5/23 schedule.  Some references below...

http://www.youtube.com/watch?v=Uep5gJ7WMIc

http://www.ncbi.nlm.nih.gov/pubmed/20308655

http://jco.ascopubs.org/content/28/12/2051.full

 

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