Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,65874,0.htm Sat, 18 May 2013 00:00:00 GMT Sat, 18 May 2013 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Ellen, I wonder if you might ask about continuous dose Temodar.  It's low dosage (50mg/m2) but taken daily rather than the typical high-dose 5/23 schedule.  Some references below... http://www.youtube.com/watch?v=Uep5gJ7WMIc http://www.ncbi.nlm.nih.gov/pubmed/20308655 http://jco.ascopubs.org/content/28/12/2051.full   jon4156 Fri, 04 May 2012 00:00:00 GMT chris & ellen, Dr. Jay Loeffler did my radiosurgery in 1993.  kathleen kat54 Thu, 03 May 2012 00:00:00 GMT Ellen I am so sorry .  Inly did radiation. So far no chemo.  don't second guess your decisions.  we do the best we can with the information we have.  Prayers for a successful treatment and peace of mind.  kathleen kat54 Thu, 03 May 2012 00:00:00 GMT Dear Ellen RADIATION IS A MUST !!!! It will save you ! Please if you need second opinion do call Dr Jay Loeffler at Mass General in Boston. I believe he is top in the US and they have Protom Beam ! Go for it it can be done and YOU will be the one !!! Send news Warm hugs Cris Cristiana Thu, 03 May 2012 00:00:00 GMT dear ... my son nvar 11 years old ...will had 2en phase of raditian on 7-may ... after that doctors desided about radiation treatment for him ... am wory ... god bless you .. nvarhuner Wed, 02 May 2012 00:00:00 GMT Never doubt yourself about the Temodar, you know yourself better then any doctor does, you made the best decision for yourself.  You'll do great with the radiation, this is a crazy ride we all are on, but it makes us that much stronger!!!!!!  WERE SURVIVORS!!!!!!!!!!!!!! Leeland Wed, 02 May 2012 00:00:00 GMT Ellen, I continue to pray for your healing. jon4156 Tue, 01 May 2012 00:00:00 GMT Praying for you Ellen! sluss910 Sun, 29 Apr 2012 00:00:00 GMT Ellen, wishing you strength. You're a fighter... siblingof Sat, 28 Apr 2012 00:00:00 GMT Hi Ellen, I know it is scarey, but you are such a warrior.  You can handle it and I have faith in you! Take it easy and think positive! Love, Sheila Sheila5 Sat, 28 Apr 2012 00:00:00 GMT On Apr 28, 2012 3:55 PM EllenFisch wrote: It's with a heavy heart that I write this. I will start radiation next wk for 2-3 and then have a scan a mth after that. I guess I thought with the missing DNA in my tumor that I'd be more responsive to treatment. Doubting myself about not taking the high dose Temodar only once. Although my Doc did say a few mths later that there's no actual proof that the Temodar actually works beyond the 6 wks radiation and low dose chemo. I'm thinking about all my special friends om cancer compass. My Mom said to me if I could take this from you and give it to myself I would. I cried with my sister late last night. Ellenellen sorry it didnt work for you.  have you looked into gamma knife of stereo radiation treatment?  I know the tumor has to be under 4cm diameter but it is wortj looking at pearsonjosh19 Sat, 28 Apr 2012 00:00:00 GMT Hi Ellen - Don't doubt yourself, we heard the same thing about that there is no evidence about temodar having any effect after 6 months. Sending hugs your way. tromda Sat, 28 Apr 2012 00:00:00 GMT Hang in there Ellen! Radiation has been the answer for Tom ALWAYS!  If you are anything like him, then you will want to avoid any red meat during radiation - he can't eat it, it tastes spoiled.  When is your appointment with the Radiation Oncologist?  I know that some people have used celebrex while going through radiation - you might want to search that.  I'm here if you need me!!! -Karyn karynk Sat, 28 Apr 2012 00:00:00 GMT Oh, Ellen. I'm so very sorry! I'm crying right along with you and your sister. Don't you dare wonder about Temodar or any other path. Let's get through this radiation and zap the bugger. Vision the laser focus killing those damn cancer cells. We will eradicate this monster! Keep up the faith and best of luck next week. I will be thinking of you. Patti forhim1122 Sat, 28 Apr 2012 00:00:00 GMT It's with a heavy heart that I write this. I will start radiation next wk for 2-3 and then have a scan a mth after that. I guess I thought with the missing DNA in my tumor that I'd be more responsive to treatment. Doubting myself about not taking the high dose Temodar only once. Although my Doc did say a few mths later that there's no actual proof that the Temodar actually works beyond the 6 wks radiation and low dose chemo. I'm thinking about all my special friends om cancer compass. My Mom said to me if I could take this from you and give it to myself I would. I cried with my sister late last night. Ellen EllenFisch Sat, 28 Apr 2012 00:00:00 GMT