Partners even more likely than survivors to experience fear and worry over long term, study finds
by terrianna on Tue May 01, 2012 12:50 AM
I was diagnosed with ET 6 years ago.
I had heart stent placement and lost hearing in my right ear.
Then I started feeling dizzy. When I kept telling my doctors something was wrong, they started making me feel like it was "all in my head".
I passed out one day and was seen in the ER. They are the ones that figured out my problem and referred me to a hemotologist.
I had a bone marrow test in the Dr. office. It was not that big a deal and not that painful.
Started on Hyrdea 1000 mg/day. Am now up to 1500 mg/day. I do get very tired, but nothing that stops me from doing what I need or want to do. The Hydrea has knocked my RBC/Hgb low is all.
Anyway, would be more than happy to encourage anyone to ask questions. Thanks for listening.
by SHERRYBRAN on Fri May 04, 2012 07:01 PM
I have had ET since 1998 when I was 46. It was found during a routine physical. I take anegrylide for it. I do have issues with being anemic, and do get a little tired, but like you it doesn't stop me. I have had no other symptoms. So I guess I am really lucky. I would like to hear from someone that has had it a lot longer and what they have experienced.
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