Only now able to discuss wife's illness

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Only now able to discuss wife's illness

by Twise56 on Sun May 06, 2012 11:46 AM

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She was diagnosed last June with stage 4 lung cancer and I am still having trouble even writing this.  Our journey has been miraculous through ctca and with love and prayers from family and friends, we are now not seeing any cancer.  We have resumed a somewhat "normal" life, but are very anxious about our next visit to midwest on May 19th.  I haven't told anyone of my fears including our 4 children.  I'm so grateful to everyone that I don't know how to express myself.

RE: Only now able to discuss wife's illness

by JWoww on Wed May 09, 2012 12:57 AM

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Praying for you and your family. Expressing your feeling will help you to deal with what is going on in your life.

RE: Only now able to discuss wife's illness

by crayfish on Wed May 09, 2012 01:30 AM

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This is just loaded with cliches and I certainly am not poh-poohing your fears. They helped me. I would love to help you.

Breathe Twise! Give thanks! Enjoy every minute of that "normal" life. Isn't normal wonderful?

Now this is all easier said than done but try to, OK?

Don't get too high don't get to low. It's corny I know but but go for "one day at a time". Worrying is imagining the worse to come - when fears come up replace them imagining good.

You're on it. Your wife had good care with good results. She will be monitored - if something else would come up it will be taken care of.

I don't know about expressing your fears to your family. I was not in that situation. But go ahead and use us here. You described the outcome as miraculous but made no mention of Faith. Whatever,  I will also pray for you and your family. Faith in God is what got us through.

Cray

RE: Only now able to discuss wife's illness

by Twise56 on Mon May 14, 2012 11:16 AM

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On May 09, 2012 1:30 AM crayfish wrote:

This is just loaded with cliches and I certainly am not poh-poohing your fears. They helped me. I would love to help you.

Breathe Twise! Give thanks! Enjoy every minute of that "normal" life. Isn't normal wonderful?

Now this is all easier said than done but try to, OK?

Don't get too high don't get to low. It's corny I know but but go for "one day at a time". Worrying is imagining the worse to come - when fears come up replace them imagining good.

You're on it. Your wife had good care with good results. She will be monitored - if something else would come up it will be taken care of.

I don't know about expressing your fears to your family. I was not in that situation. But go ahead and use us here. You described the outcome as miraculous but made no mention of Faith. Whatever,  I will also pray for you and your family. Faith in God is what got us through.

Cray

Thanks for your reply.  I do understand all of the cliches.  However, I have much hope from my faith, but I want to be realistic at the same time. I feel sometimes as if I'm walking on eggshells when I talk to family.  I don't want to negatively impact anyone.  We want to keep positive enrgy.  I feel sure that as time goes on, my God, family and friends will help me through this, including these reples.  Still trying to get my head around it.

RE: Only now able to discuss wife's illness

by Twise56 on Mon May 14, 2012 11:18 AM

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On May 09, 2012 12:57 AM JWoww wrote:

Praying for you and your family. Expressing your feeling will help you to deal with what is going on in your life.

Thanks you. 

RE: Only now able to discuss wife's illness

by justlisa on Sun May 27, 2012 06:41 AM

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On May 06, 2012 11:46 AM Twise56 wrote:

She was diagnosed last June with stage 4 lung cancer and I am still having trouble even writing this.  Our journey has been miraculous through ctca and with love and prayers from family and friends, we are now not seeing any cancer.  We have resumed a somewhat "normal" life, but are very anxious about our next visit to midwest on May 19th.  I haven't told anyone of my fears including our 4 children.  I'm so grateful to everyone that I don't know how to express myself.

I know how you feel. 2 years ago my husband was Dx with stage 4 squamous cell Carsinoma Tonsil Cancer. Praise God he is in remission. I truly believe I got Post tramatic Stress Syndrome now from it. I stayed strong for him and kids. I never left his side . Home, dr visits,Hospital stays,chemo,radiation treatments, pet scans,etc.. I was so scared and held it in. I always wore a mask that I was strong. I wasnt. This last pet scan showed a shadow on his lung that has never  been there before. They want us to come back and have it rechecked in 2 months. I want to be positive but cry when Im alone. I am so scared. I know our spouses went through hell and back because we were right there with them,. Good luck and if ya need to talk ,I am here cause I know how ya feel....Lisa

RE: Only now able to discuss wife's illness

by Twise56 on Sun May 27, 2012 11:30 AM

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On May 27, 2012 6:41 AM justlisa wrote:

On May 06, 2012 11:46 AM Twise56 wrote:

She was diagnosed last June with stage 4 lung cancer and I am still having trouble even writing this.  Our journey has been miraculous through ctca and with love and prayers from family and friends, we are now not seeing any cancer.  We have resumed a somewhat "normal" life, but are very anxious about our next visit to midwest on May 19th.  I haven't told anyone of my fears including our 4 children.  I'm so grateful to everyone that I don't know how to express myself.

I know how you feel. 2 years ago my husband was Dx with stage 4 squamous cell Carsinoma Tonsil Cancer. Praise God he is in remission. I truly believe I got Post tramatic Stress Syndrome now from it. I stayed strong for him and kids. I never left his side . Home, dr visits,Hospital stays,chemo,radiation treatments, pet scans,etc.. I was so scared and held it in. I always wore a mask that I was strong. I wasnt. This last pet scan showed a shadow on his lung that has never  been there before. They want us to come back and have it rechecked in 2 months. I want to be positive but cry when Im alone. I am so scared. I know our spouses went through hell and back because we were right there with them,. Good luck and if ya need to talk ,I am here cause I know how ya feel....Lisa

Thanks for the words of encouragement.  My wife is now without any detectable cancer.  Our oncologist doesn't use the word "remission" in stage 4 cancer.  Only God knows our real purpose in life (and death). It is great to hear from another caregiver that wasn't able to show how they really felt.  I'm still bottled up as I'm sure you are.  We have a 3 month reprieve this time......praise God.  We have to stay positive for all, but like you I am scared beyond words.  Don't want to show any chinks in the armor when around family.  Would like to keep everyone positive.

RE: Only now able to discuss wife's illness

by justlisa on Sun May 27, 2012 04:30 PM

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Thanks for being there and understanding this bumpt journey...

RE: Only now able to discuss wife's illness

by Karen1963 on Sun May 27, 2012 05:18 PM

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Hi Praise God for all your good news. That your wife is cancer free and you have a three month break. I will keep you both in my prayers I am new to this site and would not reply usually but your post touched me. I just wanted to say to you that you are blessed to have such supportive friends and family. They want to help so talk to them. Talking about feelings is not being negative, it is healing. Blessings Karen

RE: Only now able to discuss wife's illness

by Brendacf on Sun May 27, 2012 06:45 PM

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So Sorry, I just found out I have Carcinoid Liver Cancer. IDK much about what I'm facing, But to read about your pain & your wife & the fact that YOU try to keep a straight face for others helps me relate even more. 

God Bless You All

Brenda

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