On May 07, 2012 4:00 AM rwasylyn wrote:
Thanks so much for the advice, my mom is on an acid reflux med which was working well until last week, it seems she's having trouble regulating things this week. I've heard that a lactose intollerance can cause some of the issues so we are trying to shy away from dairy.
I'm curious of what to expect with the surgery, as someone who has gone through it, what was recovery like?
I had the surgery 9-1/2 years ago, at age 50, and prior to a short time before diagnosis was otherwise healthy and physically fit. People respond in different ways to this surgery from what I have observed. Of course, no two people are alike.
Whipple is major surgery. I was in hospital for 11 days. Initially very weak, but I saw significant improvement over the first three months. I was able to return to work (desk job) after 11 weeks. Your Mom will be dealing with adjustments to her diet as well as physical activity at first. I think the best advice I could offer to anyone who has this surgery is to walk, walk, walk as soon after surgery as possible and as often as possible, espcially after returning home. The activity helps get your system back to working order and improves strength. That, and eat regularly even if all food tastes like cardboard, which it may at first. It isn't uncommon to have very little appetite for a while, but very important to eat. Take Creon with meals and snacks. For reasons unexplainable to me, doctors often don't think of Creon until the patient shows symptoms of malabsorption or inability to digest foods after surgery. Your Mom will be likely be unable to pay a lot of attention to all the things going on and conversations with doctors especially at first. If she can have someone with her during doctors visits, it would be very helpful. Also having someone with her at home to keep an eye on her (make sure she doesn't fall when walking etc.) is helpful.
The surgery is a big physical challenge. Barring complications, time brings strength and healing. It took six or so months before I started feeling stronger and my stamina began to improve. By that time, I had worked out foods to avoid, my appetite had begun to improve and I was finally given a prescription for Creon which greatly improved my quality of life.
Best wishes to your Mom, and to you also.