One patient with glioblastoma still alive nine years later
by tlgoldilocks on Wed May 09, 2012 09:32 PM
Just inquiring to those who might know...Can the lung nodules be treated seperately with radiation or chemo, so they stop growing or erradicate them all together? Anyone have any history with this? and was it successful?
by swdesertlover on Wed May 09, 2012 11:07 PM
My husband was diagnosed with pancreatic cancer in September 2009 and had a Whipple the same month. A scan in early 2011 showed numerous nodules in both of his lungs that were confirmed as metastatic pancreatic cancer. He was put on Folfirinox treatments and has been on them almost continuously since June 2011. He started out getting the treatments every other week, but now gets them every three weeks. His last few scans have shown that the tumors have shrunk by about 50%. While we wish they were completely gone, we're happy that for now they are shrinking. Hope this information helps.
by tlgoldilocks on Wed May 09, 2012 11:25 PM
Thanks Cindy for your reply. My dad has PC that is not operable in the tail, and has a couple of nodules in the lungs...he really doesn't want to do the chemo route, and have gone alternative with low dose Naltrexone with alpha lipoic acid to help shrink the tumors.....Are the side effects bad on the chemo and how does he feel? Thanks :)
by swdesertlover on Thu May 10, 2012 12:39 AM
I'm so sorry to hear about your Dad. I think the side effects for everyone is different, but Tommy has handled the chemo very well. He is a little more tired than normal for a few days after each treatment and occasionally has a sore in his mouth (but that is easily treated with a prescription mouthwash). The biggest problem he's has is neuropathy (numbness and tingling in his fingers and toes and being very sensitive to cold foods), but that usually only lasts a few days after each treatment. He feels it's worth these few side effects for the benefits he's received from the treatment.
I haven't heard of the Naltrexone, but let us know how that goes. I'll keep your father and all your family in my prayers that this helps him.
by tlgoldilocks on Thu May 10, 2012 02:05 AM
Thanks Cindy for the info. I will keep you posted on the alternative meds, he just started them this Monday, and may take a month to have an effect. Thanks for the well wishes, I will do the same for you and your family. Research is power, and so is prayer :)
by Tony11 on Fri May 11, 2012 02:09 PM
My dad had pc with mets to the liver and lung nodules. The only way is chemo.
by swdesertlover on Fri May 11, 2012 02:14 PM
That's what we were also told Tony. Because of the number of nodules (Tommy has many) and they are in all lobes of both lungs, the only thing they could offer him was chemo. We're just happy that so far the chemo is shrinking the nodules.
by RocCandy on Fri May 11, 2012 09:20 PM
My husband had recurrence with a nodule in each lung. Cyberknife treatments for both nodules.
by tlgoldilocks on Sat May 12, 2012 12:15 AM
by Tony11 on Tue May 22, 2012 02:15 PM
My dad had pc with mets to his liver and lungs. It was treated by chemo.
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