I got the results from my 19-month post-diagnosis MRI today and all is well and stable. My MRI was moved from next week to this week because I had a seizure this past Monday, again at work (I thinking they are getting used to it), and again I had to get hauled away by the ambulance. In a strange way, I was happy to hear my NO say today "your MRI is good, so why are you having seizures"? I was glad he could not find a good reason! We are again adjusting my anti-seizure medications including eliminating a tricyclic anti-depressent that might be lowering my seizure threshold.
I know a lot of people are having a rough time in this discussion board, but I want to tell those starting this journey there is hope. I had a gross total resection and the standard treatment and nothing else (except for self-administered melatonin and PSK now and then). There was a time when I felt I would not make it past a half a year.
-JG