One patient with glioblastoma still alive nine years later
by johngiustino on Fri May 11, 2012 03:20 AM
I got the results from my 19-month post-diagnosis MRI today and all is well and stable. My MRI was moved from next week to this week because I had a seizure this past Monday, again at work (I thinking they are getting used to it), and again I had to get hauled away by the ambulance. In a strange way, I was happy to hear my NO say today "your MRI is good, so why are you having seizures"? I was glad he could not find a good reason! We are again adjusting my anti-seizure medications including eliminating a tricyclic anti-depressent that might be lowering my seizure threshold.
I know a lot of people are having a rough time in this discussion board, but I want to tell those starting this journey there is hope. I had a gross total resection and the standard treatment and nothing else (except for self-administered melatonin and PSK now and then). There was a time when I felt I would not make it past a half a year.
by HubbyhasGBM on Fri May 11, 2012 03:43 AM
Thank you for the inspiration, and I hope all continues to go well for you.
by GBMBGONE on Fri May 11, 2012 09:23 PM
Awesome !! So happy for u. May there be many, many , many more good ones to come.
by MJLSK on Fri May 11, 2012 10:06 PM
by Cristiana on Fri May 11, 2012 11:16 PM
So very happy for you !Congratilations !!!
Adjust the anti-seizure and MANY good MRIS to come !
by Sheila5 on Sat May 12, 2012 02:58 AM
Congratulations - It is always important to post the positive findings.
Good Luck to you!
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