good MRI result today

6 Posts | Page(s): 1 

good MRI result today

by johngiustino on Fri May 11, 2012 03:20 AM

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I got the results from my 19-month post-diagnosis MRI today and all is well and stable. My MRI was moved from next week to this week because I had a seizure this past Monday, again at work (I thinking they are getting used to it), and again I had to get hauled away by the ambulance. In a strange way, I was happy to hear my NO say today "your MRI is good, so why are you having seizures"?  I was glad he could not find a good reason! We are again adjusting my anti-seizure medications including eliminating a tricyclic anti-depressent that might be lowering my seizure threshold.  

I know a lot of people are having a rough time in this discussion board, but I want to tell those starting this journey there is hope.  I had a gross total resection and the standard treatment and nothing else (except for self-administered melatonin and PSK now and then).  There was a time when I felt I would not make it past a half a year.

-JG

RE: good MRI result today

by HubbyhasGBM on Fri May 11, 2012 03:43 AM

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Thank you for the inspiration, and I hope all continues to go well for you.

RE: good MRI result today

by GBMBGONE on Fri May 11, 2012 09:23 PM

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Awesome !! So happy for u. May there be many, many , many more good ones to come.

RE: good MRI result today

by MJLSK on Fri May 11, 2012 10:06 PM

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Very happy for you. Please consider staying on the antidepressant as it may actually be contributing to your stable MRI's. There is some evidence that tricyclic drugs such as amitryptilin and clomipramine kill glioma cells.. Please research Prof. Pilkington's papers on it. Wishing you all the best!

RE: good MRI result today

by Cristiana on Fri May 11, 2012 11:16 PM

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Dear John,

So very happy for you !Congratilations !!!

Adjust the anti-seizure and MANY good MRIS to come !

Cris

RE: good MRI result today

by Sheila5 on Sat May 12, 2012 02:58 AM

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Congratulations - It is always important to post the positive findings. 

Good Luck to you!

God Bless!

Sheila

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