Researchers still found 'excellent' survival rates for both primary, secondary disease
by Luedtkes on Wed May 16, 2012 12:04 PM
Hi- For those of you newly diagnosed or seeing your local hematologist, it is imperative you get an expert opinion. This is a very rare disease and few doctors see this disorder. Google MPD SUPPORT DIGEST online for a wealth of info. You need to sign in and create a password. There are also chat groups for MF such as MPD Chat. Myelofibrosis Private Support group ison Facebook. You need to request membership and then you will have access to the site. Hope this helps! Prayers and best wishes to everyone.
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