One patient with glioblastoma still alive nine years later
by dk2lha on Fri May 18, 2012 01:14 PM
This is my first post so I hope I am doing it right!. My Dad (aged 52) was diagnosed with stage 4 RCC in November last year, he had mets to his bones (3 locations), lungs and lymph nodes.
He was started on Sutent, 4 weeks on 2 weeks off, and told that removing his Kidney was not an option due to how advanced the cancer was. After 10 weeks of treatment he had his first scan and results, the Dr was amazed at how well it was working. The spots on his lungs had gone all together, the tumour on his Kidney had reduced from 10cm to 7cm and the cancer in his lymph and bones had ‘significantly reduced’. He was then told that due to how well the Sutent had been working they wanted to take his effected Kidney out, he had the op 4 weeks ago and they removed the Kidney and the effected lymph nodes from around the Kidney.
We are a little worried as he has had a total of 6 weeks of the Sutent in order for him to undergo surgery, he started the Sutent treatment again a week ago.
My question is, is there anyone else that has had a kidney removed with stage 4 RCC with mets to their bones, if so what treatments are they on now (I think the plan is to just continue with the Sutent) and how are they getting on. We have an appointment with the Dr on the 20thJune, but we are still unsure as to what exactly removing my Dads Kidney will do for his life expectancy.
by deb773 on Fri May 18, 2012 11:23 PM
I am 57 years old (female) and was also diagnosed with metastasized RCC in November 2011. I had a 13 cm tumour in my kidney, cancer in both adrenal glands and suspicious spots on both lungs and in my pancreas. My left kidney and adrenal gland along with some cancerous lymph nodes were removed on January 6. I had a choice to take Sutent first to see if it would shrink the tumours and then have the surgery or do the surgery first and Sutent after surgery. I just wanted the tumour out of my body. My surgeon agreed with my decision as it would be removing the source of the cancer. I know that there are probably a lot of metastasized cancer cells still roaming around in my body that we just cannot see yet because they haven't multiplied but at least I know the big tumour is gone.
At the end of February, I started taking Sutent. Since then, the tumour in my remaining adrenal gland has shrunk by 1 cm and the lesions in my pancreas appear to be necrotic (filled with dead tissue). The lung spots have not changed which is positive news because they have not grown. No new nodules have appeared.
Your oncologist may suggest a period of life expectancy but the drugs available now to fight RCC are excellent and each person responds differently. I was not given a good prognosis but I choose to believe that the Sutent is going to keep doing its job and shrink or kill the cancer left in my body. I am not giving up or giving in to this disease. I have read many stories by people who have been on Sutent for years. So, in my opinion, being in Stage 4 is not a death sentence. Please encourage your dad to stay positive. You will find a lot of success stories on this site.
by Mohannair on Fri May 18, 2012 11:36 PM
My father also had stage 4 RCC & his kidney was removed. He was put on Votrient & he is doing O.K
All cases are different & depends upto the health condition of the person how each drug responds.
All I can tell you is that have faith in Doc. & pray to God, have heard of cases with Stage 4 who lived for 8-10years, so be positive & all will be O.K
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