How do lifestyle factors and exposure to environmental substances affect our cancer risk?
by dixie5 on Sun May 20, 2012 08:51 AM
by BetsyM on Sun May 20, 2012 02:30 PM
I am sorry to hear of your prognosis, but I agree that a positive attitude is always good. You did not mention why it was not resectable. Did they give you specifics? I'm wondering if you can do chemo and/or radiation to shrink it, would it then be operable? My husband was given news from a doctor that there was nothing they could do if it was metastatic (we won't know if it was because he had nodules that they couldn't biopsy, but one that shrunk with chemo). I found Dr. Seifker-Radke at MD Anderson in Houston. I would recommend getting her opinion. She is the "expert" on this cancer. Good luck to you and many prayers coming your way.
by dixie5 on Sun May 20, 2012 10:47 PM
thanks Betsy I have sent you a private reply - but I am happy to share information with other urachal adenocarcinoma patients and hopefully we can all help eachother with our collective experience
by MarkVMueller on Tue May 29, 2012 07:47 AM
Sorry to hear about your status, I wish you all the strength and positive energy possible.
My UA has spread to the spine where surgery eventually may not be possible anymore (I posted more info in another thread). I will have radiation starting next week and looking now at the chemo-options; there are many options and MD Anderson's regimen may not be the "ultimate" choice, I had 3 cycles of Cisbplatin/Gemzar before - to no avail. Prof. Alexander Knuth, head oncologist at the Universitiy Hospital of Zurich recognized as one of the top european oncoloy clinics, would start me "first" with a taxol/paraplatin regimen. He also says that treatment has to be individually customized.
I have collected various case infos on chemo and UA, I'll be happy to mail that to you.
Take care and lots of strength!
by dixie5 on Wed Jun 06, 2012 03:10 PM
I have sent you a private reply - thanks for getting back to me
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Did you or your loved one seek a second opinion before starting cancer treatment?
No, but we got a second opinion after we started treatment
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