anybody NOT cancer free after IL-2?

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RE: anybody NOT cancer free after IL-2?

by jeanabenna on Tue May 29, 2012 10:23 PM

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Hi Marcy, I did my IL-2 in Portland also.  Dr. Curti is my oncologist.  He is great isin't he.  Your right, the staff is awesome, especially George....do you live in Portland? And I also would do it again if I had to.

Blessings

RE: anybody NOT cancer free after IL-2?

by jeanabenna on Tue May 29, 2012 10:27 PM

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oops I thought that the last message from Marcy, my apologies.

 

 

RE: anybody NOT cancer free after IL-2?

by tommyv91 on Mon Jun 11, 2012 06:37 AM

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Please be careful do not confuse the two distinctively different IL-2 treatments. One: High dose IL-2 ,is only a first response treatment it must be the first treatment received nothing received (excluding surgery) before it. It involves 2-4 rounds of treatment each being 10-14 days. During this “treatment?”, you are basically in renal failure. You will gain 75-100 pounds of water weight you will look like you will explode and feel like it. Two: Low dose IL-2 this is generally self administered by injection side effects are general flu like symptoms. Other medications that administered in the same manner are Interferon B is another medication that is administered in the same manner these are auto-immune drugs

RE: anybody NOT cancer free after IL-2?

by hedyrattner on Thu Jun 14, 2012 09:02 PM

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My hubby had his kidney removed in 2004 and we went to Roswell park in buffalo for IL2 treatment after the first session and the scan we went back a second time as there was shrinkage..we did not go a 3rd time. He has since been on sutent for the past 2years, and we know how to handle all of the side affects. Since IL2 is the best treatment for curing that is why our oncologist suggested it first. Sutent is still working for us as there is still some shrinkage and no new growth..I have him also take 4tablespoons of puréed asparagus daily plus a "super green" natural drink daily with cranberry juice..he still works 8-10 hrs per day.dont get me wrong, he does get tired and have side effects at the e nd of the cycle.try the greens and asparagus..someone told us about it and it has made a difference

RE: anybody NOT cancer free after IL-2?

by TNwife on Fri Jun 15, 2012 03:01 AM

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hedyrattner

Our paths are very similar, surgery followed by IL2 (sadly ineffective), small brain met removed in Dec 2011, now on Sutent (since March 2012). Scans following second cycle were very encouraging, and we are hoping for continued good results.  I am curious to hear more about how you are handling side effects.  So far, worst for my husband in sore feet, dry mouth and fatigue.  Also, tell me more about the asparagus and "super green" drink.  In what way are they making a difference?

RE: anybody NOT cancer free after IL-2?

by hedyrattner on Fri Jun 15, 2012 01:27 PM

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Hi there.regard ing the sore feet, we went to a podiatrist who gave us some cream..I can te te name for you, and it works..regardiing te Antigua, don't get me wrong, my hubby eats tred, but we very strongly think it it is at its worse te last 3-4days on the Sutent.a few hemotoligists also entwined the asparagus to us and to my mom who has had some blood issues..take a bundle of asparagus, cut te ends odd, then cut it and put ino a pot and bl until soft..do not add anything.once soft, cool it..then put into the blender with a bit of te liquid and purée.mushy no pieces..put into container in fridge..I freeze containers of it when I make let's or over th winter..take 2-3tblspns in te morning and again at night..we have even doing this for over 3yrs nw..and his blood every three wks when takn is right on track..we are on Sutent now about 2 yrs..what other side effects.? We again heard and visited a health food store and bought a pdt called superfoods by garden of life. It is equal to al the fruits and veggies one needs in a day..you start off with a 1/4scop for a few days and work up to a full..w mix it with cranberry juice, water is gross.and drink daily.cranbe rry is also good for the blood..some may get Diarrea from it at te beginning..many friends some with and without cancer also take it and All say t gives them energy.we have changed what he eats also thugh not fanatical and our oncologist says whatever you r doing keep with it as the Sutent is still giving results.let me know wha else yu need..

RE: anybody NOT cancer free after IL-2?

by hedyrattner on Fri Jun 15, 2012 01:29 PM

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Sorry about the spelling, my computer is doing weird things..

RE: anybody NOT cancer free after IL-2?

by TNwife on Fri Jun 15, 2012 04:04 PM

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Yes, would love the name of the cream.  Also will look into Superfoods.  We love asparagus, so will stock up.  thanks!

RE: anybody NOT cancer free after IL-2?

by RugbyRob on Tue Jul 03, 2012 06:30 PM

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I, Too am a non-responder to hi dose IL-2.  I knew the odds were slim, but I was (and still am) going with the attitude that this bastard can be beaten, or at least lived with.

I just posted results of a Phase 1 study that dramatically increased the response rate to IL-2.  This is stellar news.

Pura Vida!

Rob (5 year survivor; 3 years NED)

http://stm.sciencemag.org/content/4/137/137ra74

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