PLEASE SOME1 REPLY TO MY POST

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Please Some1 Reply To My Post

by Brendacf on Sun May 27, 2012 07:44 PM

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I refuse to say i'm dying but i'm so hungry for information & what are the outcome's of carcinoid cancer in the liver????

 

RE: PLEASE SOME1 REPLY TO MY POST

by lolis33 on Sun May 27, 2012 07:49 PM

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Have you perused topic discussions on the Carcinoid board? That's a place to start.  

RE: PLEASE SOME1 REPLY TO MY POST

by Dlynn1210 on Sun May 27, 2012 07:49 PM

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Brenda -

You have come to the right place if you have been diagnosed with cancer.  We are a family who has been there, done that.  I had a different type of cancer so I won't address your medical issues but please know there are many here at the touch of a keyboard to support you - and answer any questions. 

It might help if you give a little more information to those who have traveled the road with carcinoid cancer in the liver. 

Prayers help immensely and we pray for each other daily and know we are here for you.

Diana

RE: PLEASE SOME1 REPLY TO MY POST

by Brendacf on Sun May 27, 2012 07:51 PM

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Idk, I'm lost. I posted something but Im not sure if it was the correct place.

Thanks for the reply I will see where I'm at & where I'm supposed to be :)

RE: PLEASE SOME1 REPLY TO MY POST

by Brendacf on Sun May 27, 2012 07:55 PM

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Thank you Dlynn1210 I posted somrthing before, but I got no reply. This is why I posted these words the second time, I'm so new at this & I want to meet people who have the same type of Cancer as I do & the same place this way I can educate myself more & know what to expect.

Thanks

Brenda

RE: PLEASE SOME1 REPLY TO MY POST

by Dlynn1210 on Sun May 27, 2012 07:57 PM

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Brenda

I don't quite understand the other person directing you some place else because you came to the right place.  I did note that the other person also had a different type of cancer than you but every type of cancer is addressed on cancer compass - and it is the best site I have found for being there for each other.  Please give those who have your type of cancer on CC to respond to you.  Cancer Compass is a guide through your journey with cancer - made up of patients, care givers, and survivors. 

Someone is always here 24/7 for you.

Diana 

RE: PLEASE SOME1 REPLY TO MY POST

by Dlynn1210 on Sun May 27, 2012 08:02 PM

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Brenda

Sweetie, I know how you feel.  Even though I had a different type of cancer, I can remember the day I learned that "most likely" I had cancer.  I had been tired for months - I went to bed tired and got up tired.  I had a lot on my plate but something told me things just weren't right.  I went through several doctors before finding one that knew what she was looking at - an enlarged left tonsil which then led to a diagnosis of tonsil cancer.  My world came to a screeching hault for a while.  Even though I didn't have your type of cancer and won't be able to answer questions pertaining to your type, just know that I am here to support you emotionally - as will many others.  It's normal to be frightened but knowledge is power - anytime you need to talk or vent, I'm here for you.

Diana 

 

RE: PLEASE SOME1 REPLY TO MY POST

by Brendacf on Sun May 27, 2012 08:07 PM

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Thank you Diana your great, Yes im @ the duhhh stage. My spirits are very high but i've noticed I think of this 24-7 because of the not knowing. Scared "Some" Strong "Very" but the curiosity is Killing me haha.

I will try to work my way around here & try to find people who are facing the same thing I'm facing. 

Keep in touch

Brenda/Florida

RE: Please Some1 Reply To My Post

by CanLiv on Wed Dec 05, 2012 05:50 PM

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Hello Brenda,

I represent the CanLiv Foundation, a nonprofit dedicated to advancing knowledge and research about hepatobiliary cancers and liver cancer is one of the main focus areas. You can find lots of helpful information atwww.canliv.org , including info on statistics, symptoms, diagnosis, treatment and more. We also post updates regularly on recent studies, tips for treatment and more on our Facebook page:www.facebook.com/CanLivFoundation.

Free patient e-book: http://www.canliv.org/Get-Help/Patient-eBooklet.aspx

About liver cancer:http://www.canliv.org/Get-The-Facts/liver-cancer.aspx

How to find treatment:http://www.canliv.org/Get-Help/How-to-Find-Treatment.aspx

Navigating the medical system & assembling your team:http://www.canliv.org/Get-Help/Navigating-the-Medical-System

Second opinions:http://www.canliv.org/Get-Help/Second-Opinions.aspx

Questions to ask your doctor:http://www.canliv.org/Get-Help/Questions-to-Ask-Your-Doctor.

Clinical trials:http://www.canliv.org/Get-Help/Clinical-trials.aspx

Join our community: http://canliv.org/Get-Involved/Join-Our-Community.aspx

RE: Please Some1 Reply To My Post

by rpmmeaton on Fri Dec 14, 2012 06:40 PM

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Dear Darlin, you are so not alone, I had pancreatic cancer and this huge surgery called the whipple, they take half the stomach, half the pancreaous, and the gallbladder. But I do have 4 1/2 yrs under my belt. Last week my pain mang dr. was feeling my stomach and looked quite shocked and told me my Liver is really enlarged. I'm also refusing to die right now, and also hungry for info. Wow! and it can scare the shit out of you when you on the internet and they give you all these wonderful examples of whats next.. which I really don't know, my best bet is to go for a walk on the beach right my prayers in the sand and let God do his work. I do belive in Miracles, and I will be praying for you to. You and I have today, so go have a wonderul one make someone smile and please write anytime you need me. Laughter and Love PamE

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