poems syndrome

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poems syndrome

by Karen1963 on Sun May 27, 2012 09:04 PM

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Hi I am new to this site. I have read a lot of posts and am encouraged by the support I have a rare cancer known as poems syndrome and would like to talk with others who have the same disorder. I am aware there may not be anyone but I am willing to try thanks Karen

RE: poems syndrome

by ainas on Mon May 28, 2012 08:40 AM

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Hi,

try these sites. These are for POEMS patients

http://poemssyndrome.info/

and

http://listserv.acor.org/archives/poems.html

There is also a facebook group for POEMS people

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