MM life expectancy

My father was diagnosed in July 2010 at 49 yrs old. Although I know it is difficult to tell I was wondering if the 3-5 year life expectancy is accurate?

He was in good health before hsi diagnoses and has done well thus far. He recieved a tandam stem cell transplant, which put his prtien levels at 0 and is also taking Revelmind every other day, to maintain his state of remission.
He lost a signifigant amount of weight early after he started chemo due to foods tasting "awful" as he said but has since gained all the wight back (but with no muscle)

The only complication he has now is neuropathy on his feet and legs, but has very well functioning kidneys and is not showing signs of any organ distress.

Is there anyone who may be/know of a similar situation that could tell me how they are doing?

Thannks so much!

I wouldnt worry about life expectancy.  There are too many variables.  He sounds like he is doing very well right now and thats what matters.  Huge strides have been made in MM in the past few years that offer patients options they never had before.  The 3-5 year survival is outdated.  The neuropathy is probably from the Revlimid.  Is his ONC aware of this problem?

I had end stage MM when diagnosed that was 8 years ago.

I would add some natural remedies for his Neuropathy and especially he is so young.

www.healingcancernaturally.net

Hi . . .I was also diagnosed in 2010 at the age of 48 and had a stem cell transplant 9 months later. I'm now on Revlimid (10mg 21 days/7 days off) and I am working full time, feel great, am in full remission, and I have definite plans to keep going well past another 3 years.  I agree that the 3-5 year life span is well outdated. My brother knows someone who had a SCT about 15 years ago and she's still doing very well. The only thing I notice now is that come 11:00 I have GOT to go to bed because I'm super pooped . . .but I start my day at 6:30 in the morning so I think that is just  because I'm so busy.  Do NOT worry about the 5 year time line at all! :)  Oh . . and yes . . the neuropathy is very irritating but I guess it's well worth it in the long run!

Marjorie

I was diagnosed in 2006 had SCT March 2009 so going on almost 6 years now and I feel good except for some neuropathy in the feet due to the Thalamid treatments I was on before going on Revlimid.  I have a doctor appointment this afternoon at MDAnderson to get my lab reports so will post when I get back later on.

Hop