CIN3 Treatment Options

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CIN3 Treatment Options

by ssties on Tue Jun 05, 2012 06:20 PM

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Hello everyone.  I'm just looking for some input on treatment options for CIN3.  Quick backstory - had abnormal pap back in October 2011.  Since then I have had 2 colposcopys, 2 ECC's, 1 LEEP and a cold knife cone biopsy 4 weeks ago.  Unfortunatel,y I still have CIN3 positive margins after the CKC.

I am seeing a GYN/Onc and she is recommending a hysterectomy.  I have tried to do as much research as possible to see what the guidelines are, but it's all so confusing.  One place I  see that it's ok to watch and wait, another place says hysterectomy is recommended if the patient is done having children - which I am.  I'm just really confused!

I definitely don't want to have major surgery if it's not necessarily required, but I also don't want to risk the CIN3 turning into a cancer which could have been treated.  (I do realize that even with a hysterectomy it's still possible for the virus to show up in other areas, but at least the cervix and uterus would be taken care of with they hysterectomy.)

I guess I'm just having a hard time making this decision.  I am not married, not dating anyone, so I don't really have anyone to help talk it through.  I have my post-op follow up tomorrow with my gyn/onc, so I guess I'll talk through all of the options in more detail with her then.

RE: CIN3 Treatment Options

by charliodell on Tue Jun 05, 2012 11:35 PM

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Hello, CIN3, have been trying for an long time to find an site to talk to others whom have cervical cancer, without hearing the bull that goes with it, this is my second go around, first was bone, in my hip,after an bad wreck, cemo and the works,lost alot of time with my kids, 2005 told I have cervical and I was going to be a grandmother, I picked being an grandmother,still today I have not seen an doctor or any meds, it has not been easy, only myself feels the pain, my husband knows but after so long I think he forgets or puts it in the back of his mind, I was told by local health dept. that an hysterectomy would cost us 30,000 up front, I guess I die with this, don't really understand stages yet,or where I am, thought it would be really worse by now, but not complaining, if you need someone to chat with please, I will listen,

RE: CIN3 Treatment Options

by mmc1294 on Tue Jun 12, 2012 07:04 PM

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With regard to CIN3... I had a CKC just this past Friday for CIN2, which was recurrent after being succesfully treated for CIS back in 08.  I have no plans for having children and we decided on the most aggressive cone biopsy possible.  If the biopsy does not come back with clear margins, I am definitely going with an elective hysterectomy.  A cone biopsy goes fairly deep into the cervix and positive margins means the abnormal cells are VERY deep.  I'm not messing around with this.  I too realize the dysplasia can come back post-hysterectomy elsewhere.  It's never ending.

To the other poster who mentioned being diagnozed with CC in 05.  Were you diagnozed with a biopsy?  Or just a pap smear?  Have you applied for Medicaid benefits?  There are options for patients without insurance.

 

RE: CIN3 Treatment Options

by Ellamae1 on Thu Aug 02, 2012 07:52 PM

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On Jun 12, 2012 7:04 PM mmc1294 wrote:

With regard to CIN3... I had a CKC just this past Friday for CIN2, which was recurrent after being succesfully treated for CIS back in 08.  I have no plans for having children and we decided on the most aggressive cone biopsy possible.  If the biopsy does not come back with clear margins, I am definitely going with an elective hysterectomy.  A cone biopsy goes fairly deep into the cervix and positive margins means the abnormal cells are VERY deep.  I'm not messing around with this.  I too realize the dysplasia can come back post-hysterectomy elsewhere.  It's never ending.

To the other poster who mentioned being diagnozed with CC in 05.  Were you diagnozed with a biopsy?  Or just a pap smear?  Have you applied for Medicaid benefits?  There are options for patients without insurance.

 

I just got cytology results back that say CIN2-3. Thats after 1 cone biopsy and two endocervical biopsys. So now its too the leep. I have alot of ovary pain for a while i told the obgyn about my last laser treatment in 2002 for endometriosis. With all this combined they will offer a hysterectomy right? I say demand one. What ever the next step they hint is..im going to research it and jump ahead another step. I would rather do overkill to my body than sit and wait for more results. Take out the carcogenic tissue and fight the spread...someone just told me that we live this more like a chronic condition..death doesnt have to be impending. MY motto ( Where there is a will, there is a way) :)

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