Hi. Its been a long time since I've posted here, so I'll give a quick recap and update. My son was diagnosed with GBM in Nov. 2008, at age 18. He had standard treatment, 90-95% resection followed by radiation and temodar. He was on temodar for about a year, with delays between cycles because his blood counts were not holding up. (He also has neurofibromatosis and had previous treatment with temodar for an optic pathway glioma, and we think that is why his body didn't handle temodar well.)
I also put him on the banerji protocol for about a year (started it right around the time he started radiation), with his neurooncologist's blessings. His NO said it doesn't hurt, no adverse affects, might help, and it isn't expensive, so there really isn't anything to lose. I bought the ruta 6 and cal phos 3 through Washington Homeopathic Products (ordered by phone but they have a website, too), which I found out about through a yahoo discussion group for the banerji protocol. (The group had a lot of spam, so be careful if you find it and sign up for it.) I think he was taking it 4 times a day but I don't recall the specifics. But the pharmacy knew what we needed, it was just a matter of asking for the banerji protocol for brain cancer.
My son is now 3 1/2 years out from diagnosis/surgery. He is 22 years old, condition stable, no growth or changes on MRI since we took him off the temodar. There are spots we are watching but everything has been stable. He still has MRIs every two months. He has small seizures (and we went through hell with anti-seizure meds that made him crazy), and he fatigues extremely easily and sleeps a lot.
He also smokes a lot of pot, which we added in an effort to calm him down some when he was on the offending anti-seizure meds. (It got so bad, agitation and aggression, that he had a psych hospitalization.) We've now got him off the offending meds and he is doing so much better, back to the very sweet "kid" he was before.
I'll add that he eats extremely poorly, junk food. When he was in the hospital after his surgery, I asked one of his drs if he had some recommendations on the kinds of foods my son should eat. I asked in front of my son hoping for some good nutritional advice from a dr, since food was always a battle with my son and he never listened to me. My son is also developmentally disabled (autism diagnosis when he was young, high functioning but has a lot of OCD type behaviors and is borderline for MR), and food was a huge struggle all his life, trying to get him to eat healthy. But the dr said, right there at his bedside, "let him eat whatever he wants." And that was the end of our food battles. (I try healty encouragements at times but he eats what he wants.) So, my son drinks sugar sodas all day, eats take-out food almost daily, often multiple times per day, mc donalds, jack in the box, carls, burger king, dominos, pizza hut, 7-11 big gulps and hotdogs, etc... my grocery shopping list from him is always donuts, chips, soda, sausage, bacon, white bread, cheese for grilled cheese sandwiches (I've succeeded at getting him off american cheese and on cheddar), klondike bars, stoeffers frozen meals... He's been eating like this for over 3 years now. Makes me wonder if there is something in the food/drinks - an artificial ingredient, trans fat, preservative - that is not allowing the cancer to grow. Or maybe we are just the lucky ones. ???
I may not be back here for a while or frequently. (My plate is full with my son, our animals, taking care of home and yard, and working full time, so I'm not online much.) Wish you all the best of luck in your situations.