Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by HusbandHasGBM on Wed Jun 06, 2012 05:51 PM
I am thinking of starting hubby on it... From what I've read, it cannot hurt, right?
by Shitulpatel on Wed Jun 06, 2012 06:01 PM
by AllyBlue on Thu Jun 07, 2012 06:23 PM
My Dad has been on it for about a month now. We have not had a scan yet to see if it is working but I have seen some people express positive to sometimes extremely positive results. Currently he has no known side effects from it and it isn't too annoying to take because they go under his tongue. I would also like to see some other people comment who are taking this to see their experiences. Yes, I know there is already a thread out there but some fresh responses would be appreciated too.
by HusbandHasGBM on Thu Jun 07, 2012 06:36 PM
I will definitely come back to report experiences. I was hoping we might see some symptoms get better before a scan. Has anyone seen any clinical improvement before an imaging test confirmed shrinking? Thanks. Helena
by HusbandHasGBM on Thu Jun 07, 2012 06:37 PM
Dr Banerji responded to my email and gave me a treatment plan. It is going to be the one with a dose every 3 hrs, for severe cases. Fingers crossed... I will be posting as things happen. I hope it works for hubby. And I wish each and everyone of you the very best outcome for your loved ones. Thanks, Helena.
by HusbandHasGBM on Thu Jun 07, 2012 09:49 PM
OK... Hubby just got first dosage (2 tablets) of Calc. Phos.
Dr Banerji prescribed the following:
Ruta Gr. 6 CH, in pill and Calcarea Phos 3 DH, in tablets
Now, what I could find, in a hurry, online were the following:
Ruta Gr. 6X in tablets and Calc. Phos. 6X in tablets.
Do I have the right ones? I know nothing about homeopathic notations... Is Ruta 6X in tablets the same as 6 CH in pill? And what about the Calc Phos 3DH vs. 6X? I would like to get it exactly right...
And hubby is not supposed to eat or drink for 15 minutes after the meds, right?
I'd be grateful for any tips by any who have tried this and know how to do it correctly...
by oceanswimmer on Fri Jun 08, 2012 05:00 AM
Hi. Its been a long time since I've posted here, so I'll give a quick recap and update. My son was diagnosed with GBM in Nov. 2008, at age 18. He had standard treatment, 90-95% resection followed by radiation and temodar. He was on temodar for about a year, with delays between cycles because his blood counts were not holding up. (He also has neurofibromatosis and had previous treatment with temodar for an optic pathway glioma, and we think that is why his body didn't handle temodar well.)
I also put him on the banerji protocol for about a year (started it right around the time he started radiation), with his neurooncologist's blessings. His NO said it doesn't hurt, no adverse affects, might help, and it isn't expensive, so there really isn't anything to lose. I bought the ruta 6 and cal phos 3 through Washington Homeopathic Products (ordered by phone but they have a website, too), which I found out about through a yahoo discussion group for the banerji protocol. (The group had a lot of spam, so be careful if you find it and sign up for it.) I think he was taking it 4 times a day but I don't recall the specifics. But the pharmacy knew what we needed, it was just a matter of asking for the banerji protocol for brain cancer.
My son is now 3 1/2 years out from diagnosis/surgery. He is 22 years old, condition stable, no growth or changes on MRI since we took him off the temodar. There are spots we are watching but everything has been stable. He still has MRIs every two months. He has small seizures (and we went through hell with anti-seizure meds that made him crazy), and he fatigues extremely easily and sleeps a lot.
He also smokes a lot of pot, which we added in an effort to calm him down some when he was on the offending anti-seizure meds. (It got so bad, agitation and aggression, that he had a psych hospitalization.) We've now got him off the offending meds and he is doing so much better, back to the very sweet "kid" he was before.
I'll add that he eats extremely poorly, junk food. When he was in the hospital after his surgery, I asked one of his drs if he had some recommendations on the kinds of foods my son should eat. I asked in front of my son hoping for some good nutritional advice from a dr, since food was always a battle with my son and he never listened to me. My son is also developmentally disabled (autism diagnosis when he was young, high functioning but has a lot of OCD type behaviors and is borderline for MR), and food was a huge struggle all his life, trying to get him to eat healthy. But the dr said, right there at his bedside, "let him eat whatever he wants." And that was the end of our food battles. (I try healty encouragements at times but he eats what he wants.) So, my son drinks sugar sodas all day, eats take-out food almost daily, often multiple times per day, mc donalds, jack in the box, carls, burger king, dominos, pizza hut, 7-11 big gulps and hotdogs, etc... my grocery shopping list from him is always donuts, chips, soda, sausage, bacon, white bread, cheese for grilled cheese sandwiches (I've succeeded at getting him off american cheese and on cheddar), klondike bars, stoeffers frozen meals... He's been eating like this for over 3 years now. Makes me wonder if there is something in the food/drinks - an artificial ingredient, trans fat, preservative - that is not allowing the cancer to grow. Or maybe we are just the lucky ones. ???
I may not be back here for a while or frequently. (My plate is full with my son, our animals, taking care of home and yard, and working full time, so I'm not online much.) Wish you all the best of luck in your situations.
by HusbandHasGBM on Fri Jun 08, 2012 01:44 PM
Oceanswimmer, thank you so much for taking the time to post... You are such a fighter, I wish I were privileged with a fraction of your strength. From the bottom of my heart, I wish you all the best for your boy. I hope his MRIs keep coming back clean. Whatever it is that is keeping your son cancer-free, may it go on forever. God bless you always. Helena
by syhala on Tue Aug 07, 2012 09:30 AM
My mum started the Banerji Protocol last month and no side effects. She had headaches but they seem to be less frequent. We have the next MRI next month, I'll let you know how we get on.
You can contact Dr Banerji directly. It takes a bit of time for him to reply but eventually he does.
Good luck and stay positive:)
by onarolll on Thu Aug 16, 2012 11:16 PM
(reposting from another thread for time considerations)
byonarolllon Thu Aug 16, 2012 07:07 PM
Below is an excerpt from Dr Benerji's reply to me in Dec 2011. Send me your email and I'll forward the full response - I believe it's the same reply to every initial brain inquiry.
For GBM IV I'd go with the "severe cases" recommendation. We are continuing this protocol along with Temodar, and my wife is improving greatly. Prior to her recent surgery and chemo, we started the Ruta protocol and could see near-immediate mitigation of symptoms, but overall the treatment was not working quickly enough to risk foregoing conventional treatments. Many hospitals in the U.S. now use this as a complementary treatment alongside chemo and/or radiation.
You can source both Ruta and Cal Phos in the correct dosages atwww.1-800homeopathy.com - they can ship a 3 month supply to you for something like $30-$40. It's too cheap not to use it, since the benefit is measurable for us and there is no side effect or contra-indication.
As with most homeopathic remedies, the pills are taken sublingually (let them melt under your tongue), and because it's a trace medicine, it is recommended that you pour them into the bottlecap and then into your mouth rather than touching them with your fingers.
Caution: There are copycat sites by other Banerji relatives. The authentic site iswww.pbhrfindia.org
Dr. Banerji (firstname.lastname@example.org):
"For any kind of brain tumor, we prescribe
1) Ruta Gr.6c in pills, 5 pills a dose, two doses daily, morning and evening,
2) Calcarea Phos 3X, in tablets, 2 tablets a dose, two doses daily, noon and night.
Please continue the medicines for three months and then review the condition.
In severe cases we advice the medicines to be taken every three hours alternately. This treatment has done good / cured many cases & we have been using this regimen for more than 30 years with great success.This treatment we do here is exclusive, where Surgery / Chemo Therapy( CT ) / and Radiotherapy( RT ) is avoided and we get excellent results . The Ruta treatment now-a-days is being used in many countries all over the world, with or without any conventional therapy or surgery, in freshly detected cases as well as relapses, with great success."
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